heart transplant

[Winter4519]

Hi I am going for an assessment for heart transplant at the Papworth Hospital in consideration for an heart transplant. I was reading on the type of possible treatments that could be offered. As anyone been offered the LVAD (left ventricular assist device), whether positive or negative. thank you

[Blackknight57]

I’m having a icd at papwoth on the 17th march. Low lvef 38% last march. Haven’t been considered as transplant.

We might run into each other.

[Marley7500]

Hello thereI had the heart transplant assessment only 6 weeks ago, this was a 2 day assessment.

My situation is that I have dialated Cardiomyopathy and an ICD Implanted. I suffer from ventricular tachycardia which they are trying to get under control with medication. The assessment was a early check to prepare me for the future as at some stage I will need to consider a transplant as my only option

They did my assessment and mentioned a heart pump and talked about that and the pros/cons. Other than that it was just running through what life would be like after a transplant, for me it would definitely be a worse quality of life with do many meds and considerations to make each time you want to go out and meet people.

The two days were very busy, the setup at Papworth is amazing, so clean and so professional, immediately at 7.30am I was called in for my first appointment, throughout both days it was literally in and out of different clinics for various tests. It's quite demanding with the exercise one on a bike (static)... It's to push you to your limits to see what you can do... You are wired up to all sorts of machines and a close eye kept on you .. just push yourself to the limit as this judges how well you can push yourself and your heart. The whole two days setup was very slick, I was so impressed

The people are all lovely, don't be shy to ask questions. You will have a final meeting with the main cardiologist at the end of the second day to run through the results and discuss options

Enjoy the days there its worth it

[Thanksnhs in reply to Marley7500]

Hi I had a heart transplant nearly 5 years ago I have a faulty gene which resulted in arythmogenic cardiomyopathy and heart failure. I have honestly never looked back my quality of life is so much better I can enjoy things now that I couldn't have dreamed of before. The med routine is fine once you get used to it, when I am on holiday or just out and about I just pop a pill box in my bag and I have a reminder on my phone, I take them 10 in the morning and 10 at night, I have been abroad loads of times and travel insurance is less of a problem than it was before and I can enjoy myself more, 12 of us went to Benidorm for new year and I had a ball. Echo scan once a year and MRI the same. Char

[Happypainter]

I’m sorry I have no knowledge to share but just wanted to say I wish you well and hope you recover speedily