Purple feet, lack of eating and fluctuating SATS?

[NanceHope]

Wondered if anyone else has experienced this.....

Brief background: Husband has a brain injury (impacted his cognition and behaviour) from years ago so due to comorbidities his presentation can be misleading! In November out of the blue he started to experience edema and breathlessness....his BNP bloods over 6000...and was admitted via A&E into cardio. Heart ECHO showed EF at 10-15%. Within 2 weeks of being in hospital we were told he was end of life......that was 6-7 weeks ago. He is now back in his residential care home with nursing support....on bisoprolol and furosemide.

I think many of his issues are related to his cognition and heightened anxiety so I would like to check how many of you have any of these issues related to cardio.....

1) he struggles to take meds (which he also needs for epilepsy), hasn't eaten since mid December other than fortisip (says he does not like the taste of anything or feels sick)

2) He remains in bed (can sit on the edge of the bed) and has been able to stand with physio...I do think most of this is the neuro side coupled with muscle wastage...

3) his water retention is much improved and hardly visible with his lungs sounding clear now! But...his SATS fluctuate from 80-95 all of the time - maybe this is his new normal! Anyone else have this?

4) I have noticed when he is sat on the edge of the bed (feet touching the ground) his feet turn purple and his lower legs become mottled....but then when he lays back down they are ok. I understand that this is because his heart is doing more work but I again I wondered if anyone else experiences this?

5) extreme fatigue - but again much of this is neuro-fatigue has his brain has to work so much harder....but I have noticed occasional dips in confusion (which isn't normal for him).... I suspect that the more he 'rests' the harder it is becoming to do things.

He remains in 'palliative care' and has a DNR....each day I have no idea what to expect as his days vary....but to be clear - I am not seeking medical advice but looking at what is neuro vs. cardio and to listen to those experiencing some of the above?

Thanks, Nance