Needing new heart valve and have symptomatic myeloma too.

[Gooner1947]

saw the cardiologist surgeon today. A really nice guy.He more or less confirmed what my current heart situation is and that I understood it.

He's the surgeon that does the open heart surgery for those having the "mechanical" valve implanted.

He is of the opinion and I agreed that the catheter tissue valve implant was best for me. Obviously my age the main factor.

We then went on to talk about the haematologist and possible treatment for myeloma being necessary.

He confirmed again that the tissue catheter implant would be less of a risk if we had to go down that road.

He said that I will need an appointment(don't know when) with the surgeon doing the transcatheter implant. I'm still going ahead with bone marrow biopsy next Monday 20th.

He will email his findings today to both the Haematologist and the Heart Surgeon.

So basically it will be down to them how and when we proceed.

So back into waiting mode. But I do have an appointment with Haematologist on 31st January face to face.

I am hoping(but not expecting) her to have been in contact with heart surgeon and has some news. Also will need the definite diagnosis of bone marrow biopsy.

So back into the unknown and waiting mode.

[PadThaiNoodles]

Back in waiting mode, but still... progress is being made! Good luck with the biopsy.

[SandraLlew]

This can be the worst time, it's impossible to not think about it. It is worth the effort to distract your self with a hobby and if you don't have one - start one. I really hope it all goes well and that you can be treated for all the conditions.

[Whiteghost]

I just want to send you a big 🤗. My husband has multiple myeloma, he now has heart issues that they are trying to diagnose. Everything is a little more complicated because of the cancer treatment. I fully understand how you are feeling and going through. I really hope your wait isn't too long. ❤

[Gooner1947 in reply to Whiteghost]

Hope your husband is doing OK.I just hope they can do the TAVI asap. Being able to breathe better will help me with any treatment for myeloma they put me through.

But I have no idea until the TAVI surgeon a d Haematologist discuss their course of action.

Thanks

Peter

[Whiteghost in reply to Gooner1947]

Thank you, I know he is in good hands. I really hope you get answers and treatment soon. From my husband's experiences they have all been outstanding from Haematology to cardiologist consultants, and of course the wonderful nurses. Thinking of you.🤗

[Gooner1947 in reply to Whiteghost]

Can you let me know how they we t about it. Did they do the TAVI even though diagnosed like me with myeloma?Or did they have to treat myeloma first?

That's what's confusing me

[Whiteghost in reply to Gooner1947]

They are still trying to diagnose heart issues. The only info about myeloma treatment is that it most probably will have to be stopped before any kind of treatment. Which is worrying. It's so complicated🤦.

[Gooner1947 in reply to Whiteghost]

The other way round for me really. My heart condition has been all diagnosed over past 8 months. I need a new aortic heart valve.It was only last week that myeloma suspected. Got bone marrow biopsy next Monday.

May I ask what treatment for the myeloma was he having please?

I have no idea what to expect.

Thank you

[Whiteghost in reply to Gooner1947]

Depending at what stage your myeloma is, if diagnosed, will depend on your treatment. Believe me I know about the worries. Just hold tight you will be in expert hands and they will explain everything you would need to know. What treatment my husband receives may be totally different to another person with the same condition. I hope you understand why I'm not saying as I feel it could be misleading.🤗

[Gooner1947 in reply to Whiteghost]

Yes I do understand and thank you.I do wish your husband all the very best.

[Whiteghost in reply to Gooner1947]

We wish you all the best. Always here.🤗

[Ticktick]

Sailing in the same boat Goodluck

God bless you

Sending love

[DodgyTickerMum]

Hi Peter,

Just to let you know, that there’s a lady in my Rehab class - who had a T.A.V.I procedure last year - at the age of 89! She was discharged from hospital the next day, looks amazing and says she feels so much better than she did. (Her heart issues were only discovered when she was having other investigations). Recovered really quickly - much better than me, who is almost 40 years her junior!

Unlike with a mechanical valve, she doesn’t need to take Warfarin daily - like I do, which would be an added complication with your ongoing blood disorder.

Hopefully, you won’t have to wait too much longer for the valve replacement and wishing you all the best for you upcoming Haematology appointment and bone marrow aspirate results. Take care. ❤️‍🩹🤞🏻

[Gooner1947 in reply to DodgyTickerMum]

Thank you. Yesterday the cardiologist told me that it's possible my recovery could be just a week or.Just hope the suspected myeloma doesn't impact on when TAVI can be done

[DodgyTickerMum]

Fingers crossed it won’t. Please keep us posted. 🤞🏻