Went to A&E yesterday based on the advice from the paramedic. I was experiencing an increased intensity of sharp pains, dizziness and a few palpitations here and there. They were different to the pains I normally have been getting since last year's myocarditis attack.
So when I got there, they carried the normal the tests (ecg, blood tests and X-ray). All came back normal. Which is good yet puzzling at the same time.
At the end the Dr told me that the pain is unexplainable and it's high unlikely that it's linked to the heart. Initially, the first doc I saw assumed it would have been pericarditis however, at the end, turned out to be nothing.
So I'm perplexed. The pains and feelings were very similar to what I was feeling when I first had myocarditis. But it's nothing.
Has anyone experienced this too or something similar to it?
I'm thinking to request an MRI of the heart to see if there is any scarring maybe.
I wonder how long this will continue for.
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GranolawithaSmile
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It's hard to keep going whilst your drained from it all. But hopefully there will always be light at the end of the tunnel.
Yeah that's the confusing element to this, normal readings and results - like I had too - yet the pain and agony is still there. The unfortunate part is, I find mine is worse when I'm lying down, I don't know how I'm going to manage any decent sleep!
I can't lie on my left side either , I either have nights when I just can't settle and have to sit bolt upright or at the least propped up with pillows and a hot water bottle ,the pain is making me feel like I'm waiting for the bigger thing to happen again, very distressing indeed
Yeah I get that. I now play some white noises - maybe rainforest sounds, rain etc. it helps take my mind of the discomfort and eventually fall asleep. But not all the time. Maybe give that a try.
I know the feeling is overwhelming but you've made it through before and are strong enough to push through.
When I was in hospital the woman in the next cubicle played some sort of rainforest & harp music on her phone all night. Sadly the staff made her turn it off; I've missed it ever since.
My situation was further complicated as I had coronary vasospasms, vasospastic angina as well, at the sametime.
Vasospastic angina is rare and difficult to diagnose, as coronary vasospasms are transient. It's hit and miss to be able to catch the ECG changes caused by coronary vasospasms.
My vasospastic angina was confirmed by a functional angiogram using acetylcholine which induced my coronary vasospasms.
Sometimes I have small troponin blood level rises and dynamic ECG changes with my episodes of chest pain, sometimes not.
I still have unstable angina which is treated with IV GTN and morphine.
It might be worth asking your Cardiology team to consider, whether angina without obstructed coronary arteries, ANOCA is a possible cause of your ongoing chestpain.
Thanks for that Milkfairy. I hope your unstable angina improves and becomes stable at least. That's an invaluable suggestion you gave me and I'll definitely look into. I need to get through to cardiology first because they discharged me I believe.
I have experienced this many times. Have had the same systems pains constant within my upper back and various within chest but results have mostly come back normal apart from three times when I was admitted to hospital..
The problems I've found is the Dr's in A and E will say it's a normal SINUS RHYTHM and you can go home..
Unfortunately with this the Dr's are only looking at the pattern and not what's happening within the heart so your heart may be constantly fluttering making you feel rubbish but because the pattern looks the same they say good to go home. So, you can be in constant SVT but because you a normal pattern it is ignored.
Also, depending on the consultant that you see depends on the response to heart management. I have found at my local hospital they are so fixated with their speciality that they don't look at the bigger picture of what could be going on so you could have two causes going such as myself ( SVT and Angina ) but the consultant will only treat you for the symptoms and process of trying to get rid of the SVT but will ignore questions with regards to Angina.
It's sad to say that you health will be judged on cost. ( I've worked within the health service for 24 years )
An ablation can cost £10-£20 thousand to be undertaken so understand why you are tested so much, asked so many questions or told your results are normal to try and keep the NHS costs down.
A tablet is a quick fix and not always the right route.
I went to the doctors last week because of constant pain in my upper back. Again they said probably muscular and to take paracetamol! They did say to go back in new year if still happening and she would arrange for a scan. Have you had any answers?
Hope you get better. I'm tired of paracetamol and ibuprofen, they're a text-book remedy that do not fix the cause. I appreciate that they temporarily reduce the pain, however I want to deal with root cause.
No answers yet, I will continue seeking them though.
It's unfortunate about what's happening from the prioritisation of cost over care, and it's not the first time I've heard this.
Thank you for your insight. I have definitely come to the decision that I will request further investigations to find the root cause of this and I won't rest until I find something. There must be a way.
Just a suggestion - I have no medical knowledge. It is possibly Costochondritis? This can feel like a heart attack, with sharp, aching, or pressure-like pain in the chest that may radiate to the arms and shoulders. It can worsen when moving the chest wall, such as when coughing, sneezing, or taking a deep breath. Noninfectious costochondritis usually goes away on its own within a few weeks or months. Treatments include over-the-counter or prescription anti-inflammatory drugs, rest, physical therapy, and hot or cold therapy.
Hi there, thank you for the suggestion. I mean it could be a possibility, however gladly I don't have most of the symptoms such as pain when coughing, sneezing, or taking a deep breath.
Nonetheless I will most likely still mention it to them so it can be ruled out.
Since my HA last year (4 stents) i have had the worst back pain I have ever experienced. It is there almost 24/7 but sometimes it dulls down to be bearable. I have gone back and forth to hospital thinking it was a HA, gone to docs, had X-rays etc all normal......Then a junior (young) said to me this sounds and looks like Costocondritis....which is an inflammation of the nerve ends at top of rib cage. Maybe a similar thing,...Check with your doc about it. I now pop painkillers like sweeties unfortunately Good luck
Ouch I hope it gets better for you. Are you now going to get checked for costocondritis?Yeah another member suggested that to me, I've added to my list, I'll definitely bring it up with my doc for investigations. Thank you.
I was misdiagnosed with a Heart Attack and in Sept 23 and Pericarditis in October 23. Chest pain is constant and never goes away. Ebbs and Flows but never Nil pain.
We moved in Feb 24 meaning a new health authority and new cardiologist.
Begged him for an MRI and thankfully he delivered.
Result was I hadn't had a heart attack in the first nor do i have pericarditis.
Now working with Gastroenterologist to figure out if my pain is Gastric related.
That's very interesting, thanks for that. Definitely will seek that out. I was considering moving location too to get a fresh pair of eyes on my case. Perhaps I may resort to that if nothing works. We'll see how it goes.
Hey mate , i am still battling with this Myocarditis it has been 3 and half months already....and still getting chest pain sometimes also between shoulder blades, seems like a discomfort back pain, but i know is not.. I noticed every time i am over doing it get backwards for couple of days...
Two weeks ago we celebrated my brother birthday party and i was exhausted just to talking to ppl after 6 hours i just went home i really got this discomfort in my chest.... Anyway took me 10 days to get back where i was.. i noticed even playing video games make me feel tight around the chest.... So physical and emotional stress both can push you backwards. Only thing i noticed that helps me is meditation, and using RIFL machine... In your case some inflammation is going on.... when i was like that, i mean in strong pain, it happened once, i told my Doc to give me IBUPROFEN he did and help me a lot. I took 2x daily for a week..... I am doing all kind of research to see all the options.... So RIFL machine is one thing can ease down the symptoms, there is a program for myocarditis also... Another thing i will try soon are peptides, i was in touch with some Doc overseas which using these peptides for general tissue recovery, mainly sports injury... There is no enough research done related to heart conditions, that's why general health system not using peptides as a remedy yet !... But from practical use there are many benefits ...Out there was one study when the heart damage was reversed, even the scarring tissue was reversed from using peptides
If you want to do some research on your own, look it up for TB500 and BPC157 these two peptides are using among other problems for heart recovery also.
Good luck my friend i feel better when i seeing some posts from other ppl.... It has helped me tremendously what ppl advised me here....
My friend ...i forgot to tell since the beginning of my Myocarditis i am also taking Omega 3, Q10 ( that's the key player), D3 with K2 vitamins, Magnesium Glycinate , and Hemp seeds... Some ppl said Zinc might be important also..
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Myocarditis
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