More pains again...: Went to A&E... - British Heart Fou...

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More pains again...

GranolawithaSmile profile image
22 Replies

Went to A&E yesterday based on the advice from the paramedic. I was experiencing an increased intensity of sharp pains, dizziness and a few palpitations here and there. They were different to the pains I normally have been getting since last year's myocarditis attack.

So when I got there, they carried the normal the tests (ecg, blood tests and X-ray). All came back normal. Which is good yet puzzling at the same time.

At the end the Dr told me that the pain is unexplainable and it's high unlikely that it's linked to the heart. Initially, the first doc I saw assumed it would have been pericarditis however, at the end, turned out to be nothing.

So I'm perplexed. The pains and feelings were very similar to what I was feeling when I first had myocarditis. But it's nothing.

Has anyone experienced this too or something similar to it?

I'm thinking to request an MRI of the heart to see if there is any scarring maybe.

I wonder how long this will continue for.

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GranolawithaSmile profile image
GranolawithaSmile
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22 Replies
Helly75 profile image
Helly75

Same, spent 2 days in A&E this week with the same outcome. I've been having constant dull aches with really big sharp pains ,I have no answers 😞

PadThaiNoodles profile image
PadThaiNoodles in reply toHelly75

Oh Helly75, I’m so sorry to hear this. But it’s still good to hear from you again. I hope you (and GranolawithaSmile) get some answers soon….

GranolawithaSmile profile image
GranolawithaSmile in reply toPadThaiNoodles

Thank you

Helly75 profile image
Helly75 in reply toPadThaiNoodles

Thank you ,I'm still here hanging by a thread 🥹

GranolawithaSmile profile image
GranolawithaSmile in reply toHelly75

Hey the thread is stronger than it seems. Heart issues definitely keeps us on our toes but hey, take it a day at a time. Smile.

GranolawithaSmile profile image
GranolawithaSmile in reply toHelly75

Hmm, how was your troponin?I'm assuming they kept you in because of your cardiac history right?

It's not nice being left without answers, especially with such scary health situations. I'm sure there's more to be done. I'm gonna speak with my GP.

What's the next step for you ?

Helly75 profile image
Helly75 in reply toGranolawithaSmile

Don't think there is a next step , troponin was normal ,so was ecg ,I'd hardly been out of bed for weeks & couldn't take anymore

GranolawithaSmile profile image
GranolawithaSmile

It's hard to keep going whilst your drained from it all. But hopefully there will always be light at the end of the tunnel.

Yeah that's the confusing element to this, normal readings and results - like I had too - yet the pain and agony is still there. The unfortunate part is, I find mine is worse when I'm lying down, I don't know how I'm going to manage any decent sleep!

Helly75 profile image
Helly75 in reply toGranolawithaSmile

I can't lie on my left side either , I either have nights when I just can't settle and have to sit bolt upright or at the least propped up with pillows and a hot water bottle ,the pain is making me feel like I'm waiting for the bigger thing to happen again, very distressing indeed

GranolawithaSmile profile image
GranolawithaSmile in reply toHelly75

Yeah I get that. I now play some white noises - maybe rainforest sounds, rain etc. it helps take my mind of the discomfort and eventually fall asleep. But not all the time. Maybe give that a try.

I know the feeling is overwhelming but you've made it through before and are strong enough to push through.

Helly75 profile image
Helly75 in reply toGranolawithaSmile

Thank you , i don't feel strong at all , this time of year just makes it all a bit harder ,but I will fight on I'm sure ,as will you

GranolawithaSmile profile image
GranolawithaSmile in reply toHelly75

You're stronger than you realise. Just like many people on this forum.

Keeping going

Milkfairy profile image
MilkfairyHeart Star

Hello,

I had myocarditis many years ago.

It has left scarring on my heart muscle.

My situation was further complicated as I had coronary vasospasms, vasospastic angina as well, at the sametime.

Vasospastic angina is rare and difficult to diagnose, as coronary vasospasms are transient. It's hit and miss to be able to catch the ECG changes caused by coronary vasospasms.

My vasospastic angina was confirmed by a functional angiogram using acetylcholine which induced my coronary vasospasms.

Sometimes I have small troponin blood level rises and dynamic ECG changes with my episodes of chest pain, sometimes not.

I still have unstable angina which is treated with IV GTN and morphine.

It might be worth asking your Cardiology team to consider, whether angina without obstructed coronary arteries, ANOCA is a possible cause of your ongoing chestpain.

GranolawithaSmile profile image
GranolawithaSmile

Thanks for that Milkfairy. I hope your unstable angina improves and becomes stable at least. That's an invaluable suggestion you gave me and I'll definitely look into. I need to get through to cardiology first because they discharged me I believe.

Mister1 profile image
Mister1

I have experienced this many times. Have had the same systems pains constant within my upper back and various within chest but results have mostly come back normal apart from three times when I was admitted to hospital..

The problems I've found is the Dr's in A and E will say it's a normal SINUS RHYTHM and you can go home..

Unfortunately with this the Dr's are only looking at the pattern and not what's happening within the heart so your heart may be constantly fluttering making you feel rubbish but because the pattern looks the same they say good to go home. So, you can be in constant SVT but because you a normal pattern it is ignored.

Also, depending on the consultant that you see depends on the response to heart management. I have found at my local hospital they are so fixated with their speciality that they don't look at the bigger picture of what could be going on so you could have two causes going such as myself ( SVT and Angina ) but the consultant will only treat you for the symptoms and process of trying to get rid of the SVT but will ignore questions with regards to Angina.

It's sad to say that you health will be judged on cost. ( I've worked within the health service for 24 years )

An ablation can cost £10-£20 thousand to be undertaken so understand why you are tested so much, asked so many questions or told your results are normal to try and keep the NHS costs down.

A tablet is a quick fix and not always the right route.

Curlygirl101 profile image
Curlygirl101 in reply toMister1

I went to the doctors last week because of constant pain in my upper back. Again they said probably muscular and to take paracetamol! They did say to go back in new year if still happening and she would arrange for a scan. Have you had any answers?

GranolawithaSmile profile image
GranolawithaSmile in reply toCurlygirl101

Hope you get better. I'm tired of paracetamol and ibuprofen, they're a text-book remedy that do not fix the cause. I appreciate that they temporarily reduce the pain, however I want to deal with root cause.

No answers yet, I will continue seeking them though.

Is your pain getting any better?

GranolawithaSmile profile image
GranolawithaSmile in reply toMister1

It's unfortunate about what's happening from the prioritisation of cost over care, and it's not the first time I've heard this.

Thank you for your insight. I have definitely come to the decision that I will request further investigations to find the root cause of this and I won't rest until I find something. There must be a way.

I hope you get better.

Bodypump51 profile image
Bodypump51

Just a suggestion - I have no medical knowledge. It is possibly Costochondritis? This can feel like a heart attack, with sharp, aching, or pressure-like pain in the chest that may radiate to the arms and shoulders. It can worsen when moving the chest wall, such as when coughing, sneezing, or taking a deep breath. Noninfectious costochondritis usually goes away on its own within a few weeks or months. Treatments include over-the-counter or prescription anti-inflammatory drugs, rest, physical therapy, and hot or cold therapy.

GranolawithaSmile profile image
GranolawithaSmile in reply toBodypump51

Hi there, thank you for the suggestion. I mean it could be a possibility, however gladly I don't have most of the symptoms such as pain when coughing, sneezing, or taking a deep breath.

Nonetheless I will most likely still mention it to them so it can be ruled out.

Thank you for your input.

Velda1 profile image
Velda1

Since my HA last year (4 stents) i have had the worst back pain I have ever experienced. It is there almost 24/7 but sometimes it dulls down to be bearable. I have gone back and forth to hospital thinking it was a HA, gone to docs, had X-rays etc all normal......Then a junior (young) said to me this sounds and looks like Costocondritis....which is an inflammation of the nerve ends at top of rib cage. Maybe a similar thing,...Check with your doc about it. I now pop painkillers like sweeties unfortunately Good luck

Ouch I hope it gets better for you. Are you now going to get checked for costocondritis?Yeah another member suggested that to me, I've added to my list, I'll definitely bring it up with my doc for investigations. Thank you.

I hope it goes well for all.

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