I'll try to keep this as brief as possible but apologies in advance if I fail which I suspect I will
I've posted three times in the last 8 months about my partners 'heart condition'.
The new bit is that after 8 months waiting, we've been sent his health records from one of his previous Health Board ...that was a real struggle but we have them at last.
Still waiting for one more lot from 2017 to 2018 when he was in yet another healthboard and recovering from the PeriMyocarditis.
So now, the reports about the PeriMyo event from 2017 are visible, and previous A&E admissions for heart pain, breathlessness etc from quite an early age. He's only 54 but has family heart history and is very overweight.
2 yrs ago he had a single instance of unstable angina but an angiogram revealed no serious blockages and an echo showed EF of >55%. Roll on to early this year when he was quite wheezy, SVD was mentioned and Isosorbide mononitrate was added to his cocktail of heart meds. He says he feels a lot better since starting them but I still feel he's struggling.
However, what the records show in 2017, is a 'comorbidity' of HF Heart Failure (no mention of Stage) and what's concerned me most is that our GP/surgery have made no mention of annual check ups (probably because they don't have the full picture from these records), the only thing they seem focussed on is his weight.
My partner has stated VERY clearly that he doesn't want to open a can of worms again.
The after-effects of angiogram he had 2 yrs ago were incredibly painful, really awful, blinding headache, chest pain and pain throughout his body. Touching anything or being touched caused him exrutiating pain. which painkillers barely touched until they gave him morphine. They kept him in hospital overnight and by morning, he was 'back to normal'.
To this day, we have no idea what caused it but it was incredibly frightening, so I can understand why he wouldn't want to go through that again.
He's happy with where he is, how he's feeling and his slow but steady weightloss and feels that's the main cause of his laboured breathing.
So, I'm in a bit of a dilemma, torn between what he wants and concern for his health in the future/what to expect or look out for. Maybe the most sensible thing to do is give our GP the most relevant records and request an annual heart MOT.
So many things cross my mind. I'm a drama-queen, he just wants a quiet life.
Last thoughts and questions, in the opinion of you lovely folk who have experience of HF, did weighloss make a big difference for you and did Covid play a part (we both had it twice?). His Mum lives reasonably happily with HF and she's 77.
Thanks for bearing with me and any suggestions you might have.
LilySav