No AF detected but still having sympt... - British Heart Fou...

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No AF detected but still having symptoms.

Marvel3000 profile image
7 Replies

Hi All,

So start with good news no AF detected since having second ablation which is great.

However symptoms still continue of breathlessness, fluid retention, dizziness, shaking legs when walking, fatigue.

They tweaked the settings to see if it will help a fee weeks ago. Haven't noticed any difference to be honest. I have a follow up call in 3 months but feeling deflated with it all.

I'm currently on edoxaban, veraprimil and flecanaide.

Any tips will be welcomed ☺️

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Marvel3000
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7 Replies
BeKind28- profile image
BeKind28-

Hello :-)

I thought someone may have replied and maybe they will when they log on but even though I do not have AF I can relate to when things are not improving even though you feel you have been given hope how you feel deflated and how it gets to you

It is really hard but try and believe because things can take longer for some than others to get the right treatment but they will keep monitoring your symptoms until they get them under control and they will :-)

Keep finding the strength to keep pushing till they do :-)

Let us know how you get on :-) x

Marvel3000 profile image
Marvel3000 in reply toBeKind28-

Thankyou Bekind28. I think I'm just exhausted as it's been nearly 2 years with these symptoms now. I feel like from a Cardio point of view they have done all they can now. Not sure they will do much more unless something comes up on the next download 😔

BeKind28- profile image
BeKind28- in reply toMarvel3000

Hello :-)

I know my circumstances are different to yours but I do know how you feel been exhausted dealing with symptoms and nothing been resolved

Don't give up hope though and always speak out when you get the chance to say how much this is affecting you

I really hope they find something for you :-) x

KeepingHealthy profile image
KeepingHealthy

I had the same symptoms when I was taking Flecainide. My Cardiologist told me to stop taking it straight away and increase the Bisoprolol to 5mg per day, I take it in 2 x 2.5mg per day. It took a few days to get the Flecainide out of my system, but I have felt much better ever since. I would seek medical advice before your follow-up appointment. Good luck.

Marvel3000 profile image
Marvel3000 in reply toKeepingHealthy

thank you for your reply. they actually increased my flecainide to max. Trouble is if I stop taking it then I go into AF. I did ask them about reducing medication at the recent check but was told no they want to continue them. Bisoprolol doesn't agree with at all made me very wheezy :( so difficult finding he right solution.

KeepingHealthy profile image
KeepingHealthy in reply toMarvel3000

Don't suffer in silence and keep going back to see the experts until they get you feeling well again.

Marvel3000 profile image
Marvel3000 in reply toKeepingHealthy

Thankyou. Sometimes I feel like they think I'm a hypochondriac Lol

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