pulmonary hypertension - please help. - British Heart Fou...

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pulmonary hypertension - please help.

puddy68 profile image
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Hi Everyone. Thank you for taking the time to read my post. I have recently been diagnosed with cirrhosis of the liver [my own stupid fault - alcohol]. I also have an anxiety disorder, and it's taken me several weeks to get my head around the cirrhosis diagnosis, and get past the anxiety attacks about this. I am now living "clean" - no alcohol/cigarettes for 5 weeks, trying to improve my diet and I've joined a gym.

Anyway, on Friday I went to hospital for a gastroscopy, and the anesthetist was looking at my notes from the hospital from 2 years ago, when I was admitted to ICU with Infleunza Type A and pneumonia. A section of my discharge notes read, in reference to a scan done on my heart: "Normal LV ejection and valvular function. Impression of dilated RV with reduced contraction. Mild to moderate pulmonary hypertension."

There was no recommendation to follow up with a heart specialist. She asked me lots of questions about this and any symptoms I may be experiencing. I mentioned that I do get short of breath if I have to walk a medium to long distance, yet I have no problems on the rowing machine at gym [although admittedly I don't push myself very hard], yet I do 20 minutes on it. No shortness of breath when doing normal activities at home. No fluid build up anywhere. My Dad also has an enlarged right side of heart, but his doctor said that his was due to too much exercise [he's a fitness fanatic]. He's had a couple of stents [stints?] put in, and is on beta blockers.

She recommended that I see my doctor to get a referral to a specialist to see about the above information [even though it's been 2 years]. I am now absolutely petrified, my heightened anxiety has kicked in again, and I've been looking at google sites where they are telling me only have 2 - 3 years to live. To say I am anxious is an understatement.

Could someone please, please help? Thank you so much.

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Milkfairy profile image
MilkfairyHeart Star

Welcome to the forum,

I don't have a lived experience of pulmonary hypertension.

The hospital I attend is a specialist centre in London for treating patients with Pulmonary Hypertension.

I am in hospital several times a year and often meet other patients with Pulmonary Hypertension.

They are offered the latest treatments available.

Dr Google's consulting room isn't always the best place to find out information about heart disease.

You can email the BHF cardiac nurses for more reliable information.

hearthelpline@bhf.org.uk

I note you are based in Australia, I have given you a link to an Australian support group for people living with pulmonary hypertension.

My friend's mother in Australia has lived with pulmonary hypertension for many years and found this group helpful.

I hope you are able to find a specialist to help you further.

phaaustralia.com/page/2/wha...

puddy68 profile image
puddy68 in reply to Milkfairy

Thank you so much, MilkFairy. I really appreciate your reply - I'll have a look at the link now. Once again, thanks so much. God Bless.

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