Revitive with a mechanical valve

[Clairealou]

hi all. I have had considerable OHS and now my mitral valve is mechanical. However, I also have AF and PAD and my lower legs and ankles do get quiet swollen despite the diuretics I take daily. I know a few people with a Revitive machine that do get a lot of relief from it but none have the health issues I have. I know they’re not recommended for people with a pacemaker but does anyone out there with a mechanical value have one? I would ask my cardiologist but don’t have an appointment until next year and of course, this warm weather makes it worse. Thanks all

[RufusScamp]

Have you tried phoning your cardiologist department? Or the BHF nurses might be able to advise you.

[Clairealou in reply to RufusScamp]

that’s a thought. Yes, I’ve just noticed there’s an ‘ask BHF’ button on here. Thanks Rufus, I’ll give them a shout

[McChillsalotUK]

discuss this with your GP, there are lots of different ways to try & improve your situation Claire & i would be talking to my GP about the options available to you individually......so your GP is best as a first call. i would also talk with your local cardiac rehab team who you should have been involved with after your OHS & release back to home for ongoing rehab & support.... (yes, im in the zipper club too, OHS 2018).

my local team were excellent & happy to provide ongoing advice /support.

hope things improve for you, & welcome to the Zipper Club 👍

[Clairealou in reply to McChillsalotUK]

I’ve had 5 OHS 2006, 2011, 2012, 2014, 2021 and so the cardiac team don’t really know what to do with me and now, I see no benefit in asking them. My lungs are badly damaged due to all of the surgeries and having them ‘unstuck’ from my rib cage a number times (yes, that is the downside of multiple surgeries) and so I can’t walk far. So, there are no options for me really and I get told to just ‘do what you can’. That’s fine. I’m ok with it. I just want an opinion on revitive that’s all and if anyone on here has one. However, I will definitely ask my cardiologist for an opinion the next time I speak to him. Thanks

[HeedioMk5]

Hi Claire, We've not spoken for a while, this is my latest account as I keep deleting them after a few months.

Sorry I can't help with the revitive question, so just replying to see how you're doing, but I see you have problems with your lungs now.

If you want to talk, please PM me.

Best wishes

Heed

[Clairealou in reply to HeedioMk5]

oh Heed. How lovely to hear from you. I was wondering where you’d gone. Yes, I’ll PM you over the weekend