myocarditis

[12dr]

currently in hospital awaiting an mri I’m having worsening breathlessness and pain on lots of meds had covid myocarditis 3 years ago which cleared after 6 months and had symptoms worsening over 6 weeks anyone else tests such as troponin normal ?My echo showing lower ef than last time partly reason for doing mri .

[Lowerfield_no_more]

Hi

It might be of help to you and members if you deleted two of the three identical posts now up and running, preferably before you get any responses. If you go to and click on 'More' under your post there is a 'Delete' option which should remove the post.

[Identiy in reply to Lowerfield_no_more]

If I am correct in my understanding of your post that your troponin is normal, then my understanding is that you don't have myocarditis.

Myocarditis causes inflammation and damage to the heart muscles, and in doing so, troponin - a substance which is usually only found in heart muscle - is released. If there is no troponin elevation, then your heart muscle is not being damaged currently.

Perhaps it was damaged with the previous bout of myocarditis.

Good luck with the MRI and let us know the results

[Catkin-blake in reply to Identiy]

while most people with myocarditis have raised troponin, you can still have it with normal tropinin levels, a MRI will confirm inflammation

[12dr in reply to Identiy]

Thankyou for you reply I had myocarditis 3 years ok normal troponin confirmed Odema myocarditis from mri .2 thirds of patients will not have raised troponin with it .x

[JayW22]

I have reoccurring myopericarditis (Myocarditis and Pericarditis combined) and my troponin levels have never been raised. Lower EF will mean your heart is inflamed & not pumping as well as usual. I expect you will be given colchicine & omeprazole along with ibuprofen after the MRI confirms this. Good luck

[12dr in reply to JayW22]

Yes Thankyou .mri showed pericarditis no myocarditis and they have tweaked my meds .My ejection was 60 % last flare up was 65 % but not to worried bout that x

[JayW22 in reply to 12dr]

This is fine. When I had my first case I was down from 65% to 45%. But my condition is chronic. Hope yours doesn’t come back again after this 🙏

[Shabana1974]

Mine is Normal but I have severe Heart Failure (Myocarditis) . Mÿ issues only show up on Echocadiogram. My MRI results took several months for the results to come through. And it only confirmed Echocadiogram results. But no actual cause to how my Heart is in such bad condition.

Please don't think about the results of your MRI as they take thousands of images and it takes months to process.

Best of luck

Shabana

[12dr in reply to Shabana1974]

Thankyou for your response .I am sorry you have heart failure .I have had results back as impatient from mri and the mri shows no myocarditis and some pericarditis.They have tweaked my meds now .x

[Shabana1974 in reply to 12dr]

Glad to hear you just need meds tweaking xx

[12dr]

Thankyou xx

[Terrywill12]

Good evening 12dr. I had myocarditis 3 years ago. Seen this post come up on daily update email so thought I'd give it a read.

Would just like to say I'm glad your MRI has showed no myocarditis. There's nothing worse. Wish you a speedy recovery x