Aortic Stenosis

[515444Grhmr]

I have Aortic Stenisis that is now severe. I get very tired a lot of the time, almost to the point that I feel like I’ve been drugged. Has anyone else got this. Also I would like to hear if anyone who has had TAVI and their experience. Thank you.

[Petitlady]

I had severe aortic stenosis and the main symptom for me was tiredness. I felt completely disengaged and had to sleep for one or two hours in the afternoon. I am a bit younger than you (67 now) and I had OHS about a year ago. I still need about 9 hours sleep a night, but my daytime energy levels are much better.

[515444Grhmr in reply to Petitlady]

Thank you,

[Hanibil]

Hi had a mechanical aortic valve replacement in 2005, from hardly being able to walk I was back to being able to do almost anything I wanted.

[Rhinos67]

I had severe AS, diagnosed in 2021 when I was seeing stars when trying to run. Turns our that I had an undiagnosed congenital heart defect that I was blissfully unaware of. I was tired, but not worryingly so and get asking if they'd got my diagnosis wrong. Obviously they hadn't and they told me to take it easy until surgery. I had OHS 6 months later and I'm doing well now, but recovery wasn't as immediate as I'd hoped There are Facebook groups aimed at Aortic issues and Heart Defects and I believe some in the one that I joined who had TAVI if you don't get the answers that you need here. Several in their 70s too, who had OHS.

Best wishes

Joanne

😊

[515444Grhmr in reply to Rhinos67]

Thank you. Glad you now feel better.

[Ageingfast]

I was sleeping 22hours a day at the final preop stage. A key to the severity was when I started to fall forwards.

Waiting is the worst bit, so you will soon be in the happier stages once you get to the fabulous cardiac department of the hospital.

Sooty

[515444Grhmr in reply to Ageingfast]

Thank you.

[cappachina]

Hi I had aortic valve replaced by TAVI last year at the age of 76 Great way to have it done so go for it I had Edwards Inspura valve with should last 20 to 25 years but xan also be replaced by another TAVI if needed I was in hospital for 2 days then slow recovery at home It took longer than I thought to recover my strength and energy. I was told that some people feel wonderful in 6 weeks but others take a lot longer. Compared with OHS though it's a no brainer which to have.