aortic Stenosis

[bowls463]

hi I have just had my 6 months echocardiogram and the sonographer say’s she is surprised I don’t have symptoms, as valves are quite tight ! Am waiting to see my cardiologist now but wondered if anyone else found they had severe valve problems with little signs of symptoms?

[Taviterry]

Two years ago, I mentioned to my GP that in the past three or so winters I had discomfort in the middle of my chest when setting off for a walk, though it went away after half-an-hour or so, after which I went on to complete walks of five hours plus. No other obvious symptoms. After a minute with his stethoscope, he diagnosed a faulty valve, later confirmed to be severe aortic stenosis. In the following months, other symptoms developed, but a week before my TAVI op I cautiously completed a six-hour walk in two stages.

I still get that chest discomfort when setting off, but a recent ECG showed that all was well with my heart.

(I gather that post-op rehab sessions often start with gentle warm-ups, so perhaps I ought to try these before setting off for a walk.)

[bowls463 in reply to Taviterry]

thanks for that and glad your on the road to recovery 🙂

[Yumz199725]

Yep same for me accept few months later started developing symptoms which landed me in hospital x hope your able to speak to cardiologist soon ❤️

[bowls463 in reply to Yumz199725]

Thanks, hopefully get sorted before gets too bad! Hope your recovering well 🙂

[Yumz199725 in reply to bowls463]

Yeah I hope so x yeah I was in hospital for nearly a week but haven't had surgery yet.

[bowls463 in reply to Yumz199725]

O I see we’ll take care and hope sorted soon

[road2ruin]

All I had was some chest 'discomfort', but only when exercising quite hard. One of the giveaways, which I or the GP didn't pick up on at the time, was my BP was quite high. After the OP it's now quite low. I had my OP about 4 months after the intial diagnosis.

[Petitlady]

yes. Me too. I had a bit of chest discomfort and my blood pressure, having always been good suddenly went up. I went to see the GP about the blood pressure and he sent me for an echo. I was expecting to be put on medication when I saw the GP but within weeks learned that I had severe aortic stenosis and was facing open heart surgery 🫨. I had surgery in June 2023, recovering was sure and steady and for the last year or so my life has returned to normal

[bowls463 in reply to Petitlady]

That’s good to hear. I was diagnosed last September as severe but heart in good condition so just checks , had one yesterday as said. Take care

[Hoyde]

Hi. I was admitted to hospital with what turned out to be unstable Angina. While I was there I had an echocardiogram which showed severe Aortic valve stenosis. Because the priority was sorting out the angina I left with a bag of pills. The discharge letter was just a list of the drugs and my diagnosis.

Wasn’t well at the weekend with what I thought was Asthma. Managed to see duty GP. Between us we have now come to the conclusion that my breathlessness is not due to Asthma. She thinks I was misdiagnosed. The only symptoms I have had over 18 months was breathlessness when walking briskly and very occasional light headedness. Which I put down to a change in bp med.So I wouldn’t say I had any symptoms, only what I could put down to rushing around and aging.

The GP was not impressed that I hadn’t been given a follow up appointment. She wrote a detailed email referring me to the Cardiac dept and at lunchtime I got an email appointment in 8 weeks time.

I hope you get an appointment soon.

[bowls463 in reply to Hoyde]

Well hope they sort you out soon! I should get one soon as last time it was 2 weeks after my echocardiogram. So will see . Take care

[Marje99]

I have severe aortic stenosis but at present no symptoms due to have hip replacement tomorrow which puts me more at risk am terrified

[bowls463 in reply to Marje99]

Hi hope all goes well with hip op . Take care

[SuddenShock in reply to Marje99]

Likewise, I hope that it all goes well. Waiting seems to be the hard part but hopefully you will look back on today happy that the worst is over and you are heading to a recovery

[momander]

According to my cardio rehab nurse, there are a high percentage of people who have aortic stenosis and live entirely healthy lives without being aware of it

[bowls463 in reply to momander]

Hi yes I can believe that as I must have had mine for ages before diagnosis, at least now I know why hills were an effort ! Take care