Mitral Valve Disease

[HGEO]

New to this page as ive recently been diagnosed with mitral annular disjunction with mild mitral regurgitation at the prime age of 25. Wondered if anyone else suffers with this condition and can give me any information about living with it , what to expect etc

i believe mitral regurgitation is common but i have been told my mitral annular disjunction is very rare be good to know if anyone else suffers with this that can offer me some support 👍🏽

[Laurenzo]

Hello. I'm new here as well, and not english native speaker.... so sorry in advance.

I too was diagnosed with mild mitral regurgitation when I was around 30. I had bi-leaflet prolapse at that time.

First thing, it can stay like this forever, and with no symptoms at all, which was my case. You just have to check with an echography every 5 years, then every 2 if worsening, etc ..

In my case, I ended up being operated at 47, as the leak became severe. But still no symptoms at all. I had the mitral annular disjunction (and bileaflet prolapse). That only made the surgeon a little bit more challenged. Mine was happy with that.

The op went well, minimally invasive, and after 5 days was discharged and able to live quite normally. I'm now 3 months post-op and I would say my recovery is 90% complete.

All in all, don't worry with your condition and just check it from time to time. I never was told of any restriction.

[HGEO in reply to Laurenzo]

hi laurenzo really appreciate your response, i have been worried a lot about it as my consultant did not really give me much information about it and no one can really tell me much so its helped to know im not the only one with this condition.

Unlike you i have actually been experiencing symptoms such as chest pains , heart pulpatations and shortness of breath at times i have been experiencing these for about 6 years but recently were becoming more noticeable. All my bloods and chest x rays were normal and everyone tried to tell me i was experiencing an aniety attack but i knew it was more then this. I had to push the doctors to send me for an echo and in the end found that i had this valve disease. Although diagnosed i am not bad enough to need to be put on any medication as of yet and my consultant needs to see me every year now to check on my condition.

[LoveRowing in reply to HGEO]

hi, I have been diagnosed with MAD, but not been told anything about this condition by my cardiologist’s treating my AF, I’ve just been referred to a specialist cardiologist for review, but that was 6 months ago so his waiting list is obviously very long!! I get palpitations and chest pain, but I have always assumed this is due to AF. MAD doesn’t seem to be very well understood. I was very fit and active, but am a bit scared to increase my activity level again now AF is controlled until I know more about the implications of MAD