Pulmonary Hypertension

[Stradey]

HI,

I have had Atrial fibrillation for the last 20 years. I have had 5 ablations and last year I was diagnosed with heart failure with a reduced ejection faction. My lovely heart failure nurse said that my recent results after an echocardiogram had improved greatly and the cocktail of drugs had worked. I had a letter from the cardiologist the following day saying that my left ventricle has improved but my right ventricle was still impaired. I was then informed on the letter that I have pulmonary hypertension, which explains why I am still breathless. I was elated on Monday and now feel very anxious and down with this new diagnosis.

Has anyone been diagnosed with PAH?

Thanks for reading

[Deejay62]

Hi sorry to hear you too have been diagnosed with pulmonary hypertension. Originally I joined healthunlocked to find out about PAH but hardly anyone had it. I sent off for the booklet from Pulmonary Hypertension Association Uk. I paid a couple of quids for it online, and I was sent a load of helpful booklets about it.

My PAH is a progression of heart failure. I checked through my other reports and discovered it was always there after I had an Echo but it’s now severe. It was in a report to me, so when I saw my cardiologist I asked him about it, and he said it’s a progression of my heart failure. I’m now seeing them 6 monthly and I’m seeing an EP because I’m in persistent AF and I’m getting a lot of VTs which my CRT-D is dealing with.

With you it will depend what stage it is. I wish you all the best with it.

[Hidden]

Sorry about your news. For me I believe I don't have pulmonary hypertension. However due to my congenital heart issue of ebsteins anomoly my right side of the heart is not functioning very well. So currently from the Echo there is a possibility that I could get pulmonary hypertension. So the next step on my journey is to have a cardiac catheterization to see what the pressures are in the various Chambers of the heart and into my lungs. Not looking forward to that, but that's the next step. I suppose the more information that can be obtained then the ability to get what I have as efficient as possible. Currently on entresto and dapagliflozin. To improve the ventricles. But we will have to see. But this journey does bring with it lots of emotions. One minute you think yes iam doing OK the next they knock you with a big stick. You take care