Nustendi: Is anyone else here taking... - British Heart Fou...

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Nustendi

Frogman53 profile image
8 Replies

Is anyone else here taking Nustendi ? my wife had her annual review with our surgery's pharmacist and he told her that her cholestorol was higher than they liked it to be. She was already on Ezetimibe but he's stopped that ( good job as you can't get it ) he put her on Nustendi which is a combi of Ezetimibe and Bempedoic acid , she was OK to start with but now her BP is up and she's having bad headaches....anyone else on theis combi with these symptoms ?

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Frogman53
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8 Replies
fishonabike profile image
fishonabike

you could ask for advice from the pharmacist, they are the ones who know the most about medication

Muddyone profile image
Muddyone

I started them a couple of weeks ago and seem to be okay with no side effects so far. I could not tolerate statins having tried a couple of varieties and my cholesterol is so high that the doctor felt Ezetimibe on it's own wouldn't work well enough.

It seems not many people are on this medication. My pharmacist said I was the first person he'd had put on it. The doctor said it cost £55 a month, so maybe that's why!

I think raised blood pressure is one of the known side effects.

GShep64 profile image
GShep64 in reply toMuddyone

Hiya - i’m due to start this medication

Just scared - i have Svt , tendinitis . Asthma . Type 2 diabetic , hypertension etc …

But they say it’s a new drug -

They do not no what effect it has on the heart

Side effects can cause Af Various others which i have .

But my cholesterol -high -cant take statins tried all except pravastatin

And now i’ve had a blood test posted to check

Liver function & retest cholesterol

Not taken yet 🙈

Just was scrolling to see if many others had same med & how effects them

Regards Bev

Frogman9 profile image
Frogman9

Hi... My wife's side effects have settled down and she's been OK she's going for a blood test today to check out how she's doing on them.

Muddyone profile image
Muddyone

been on them a couple of months now and no side effects.

Cholesterol come down from 8.5 to 3.5.

Ivorydarling profile image
Ivorydarling

Hopefully it works, my dr put me on a statin and the side effects were horrible. Im just getting my movements back from not being able to walk from the pains in my legs, i have been on this for 3 days, and ive got a uti hopefully its not a side effect and it's just because I'm not drinking enough. Hope your wife improves.

Aliwally profile image
Aliwally

I have been on Nustendi for 9 months now. Last week I had a trip to A&E with a nasty bout of gastritis, which is on the list of side effects. However, I also have gastric reflux, so that could have been the cause. It's so difficult to know, but am keeping an eye to see how it goes.

Hugc profile image
Hugc

hi,

Just came across this post. I have been taking this now for around 10 months. Tried other types before but didn’t agree with my liver.

My blood pressure has always been on the low side and never had headaches.

A couple of months into taking this my blood pressure is steadily increasing even though my cholesterol result are improving. I have also noticed the I am getting more severe headaches, a few of which have made me sick.

Spoke with nurse (as gp won’t physically see anyone ), she advised highly unlikely to be the statin, but quick to offer me blood pressure tablets!!

Calling them again tomorrow as this weekend has been the worst so far 😢

I know this does not help answer your question and hope your wife has found a solution and some relief from the pain.

Regards c

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