Hi all just found out I now have angi... - British Heart Fou...

British Heart Foundation

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Hi all just found out I now have angina and also arthritis of my right knee and hip.

Jimbo53a profile image
9 Replies

Hi had phone call yesterday from my cardiologists secretary about ct angiogram I had on 2nd of June. I am waiting on letter but from what she has said I have angina, heart failure ef lbb also found out I have arthritis thought it was just fatigue from hf. They will be contacting gp to start me on a couple more meds forgot names. So now more waiting around seems since I was diagnosed that's been a big part of it.

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Jimbo53a profile image
Jimbo53a
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9 Replies
Anon2023 profile image
Anon2023

hi. The waiting is absolutely awful, I’ve now got used to it to some extent because it happens after every appointment or procedure and doesn’t necessarily mean that I’m getting bad news. The NHS does not move with speed so you need to be your own advocate and chase things up. It’s the administrative side of having a health problem I’m afraid. It’s good that they are looking to put you on medication and I would encourage you to chase this up with your GP. Hopefully you will also get an appointment with the heart failure team in due course too. Good luck x

Jimbo53a profile image
Jimbo53a in reply to Anon2023

Hi thanks . Too right about the chasing up things it seems to be the only way anything gets done .

Anon2023 profile image
Anon2023 in reply to Jimbo53a

it might not feel natural to you but I think you need to be assertive with them and don’t let them forget about you. Unfortunately the situation seems to be that those who shout loudest tend to get things moving. I played up a little to get seen by the heart failure team after I was told it could be a 12 month wait , I was seen in 4 months . it goes against the grain to pester NHS staff but when your health is at risk it’s a necessary evil x

Jimbo53a profile image
Jimbo53a in reply to Anon2023

Absolutely agree and it isn't natural for me but I am learning slowly. Thanks

Jimbo53a profile image
Jimbo53a

Thank you. Yeah it always seems to be that way with me lol. Will definitely be on here as much as possible hopefully helping others where I can.

70Percent profile image
70Percent

Sorry to hear of your diagnosis. At first I thought what a shame the Dr didn’t call you but then I’ve experienced a very “straight forward” Dr who didn’t really soften any message!

Hopefully the secretary was kinder.

The message on here seems to be things will settle in time and it’s quite normal to experience quite a bit of stress in the beginning.

Good luck with it all, be kind to yourself, always get a young person to read you the label.

Jimbo53a profile image
Jimbo53a in reply to 70Percent

Thank you. The secretary was good it's usually who I speak too. Just waiting on letter now as I forget alot of what is said on phone. Hopefully new meds Will help .

bludnut profile image
bludnut

Hi,

I have suffered from arthritis for over 40 years and was recently diagnosed with Angina, my arthritis is in my spine around vertebra 5,6,7. That results in me having critical pain throughout my body. There was a programme on tv last week showing 3D images of our body, one was about arthritis in the spine and it highlighted how the spinal cord can be trapped by thin discs and abnormal growth on our spine. The lady had an operation and it was sucessful thus relieving the pain. In my case I was offered a similar operation but when I asked the surgeon of the sucess rate he said it's 60/40, but the 60% was permanant paralisis, so I declined the operation and put up with the pain. Regarding angina,I am curently taking part in an Angina Management Programme in which I am being monitored by an NHS heart surgeon on one to one basis, but my wife was also invited which has greatly relieved her worry. We also have meetings with other angina sufferers one who has had it for over 16 years, had a by pass and two stents. All of this attention has greatly helped me to come to terms with my angina. So, please ask if similar groups are available in your area, and if they are ask your GP if you can join. All the best,

bludnut

Jimbo53a profile image
Jimbo53a in reply to bludnut

Thank you. Sorry to hear about your arthritis of spine. Hope you are getting good pain relief. As for the Angina I am waiting for the letter as I struggle to retain info over phone will then discuss options with GP. Would definitely like to be in a thing like yours if there's one available in my area and definitely will be mentioning it to my gp.

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