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Hi, I am new on here. I am 54 years old, female and have just been told that I have an irregular heartbeat. I also have multiple sclerosis

DruD13 profile image
15 Replies

I'm just a little confused - I have always had very low blood pressure but was informed last week that I have atrial fibrillation. I was sent to hospital following pain/pressure in my chest and a feeling of being strangled around my neck. I was admitted and it was discovered that my pulse was racing up as high as 180/190 bpm but was given medication to bring this down. My question is:- is it the case that atrial fibrillation only takes place when you get that uncomfortable/painful feeling in your chest or is my heart defibrillating all the time and I just can't feel it. I have just ordered a home blood pressure test kit so that I can keep an eye on my pulse myself. I guess I am just taken aback by this and am scared to do anything in case I set it off again. My family has a long history of heart problems insofar as both of my parents, all of my 10 aunts and uncles and one sister died of heart attacks.

I would really appreciate any thoughts/comments anyone can offer. Thank you.

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DruD13
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15 Replies
Mollykelly123 profile image
Mollykelly123

Try not to worry to much as this is not good for a fib am sure your now on a blood thinner and beta blocker for your afib DruD13 you should now join af fourum

DruD13 profile image
DruD13 in reply toMollykelly123

thank you. I have the beta blocker but not the blood thinner. Thanks for the heads up, I will look into accessing the forum.

BigT2013 profile image
BigT2013

Hi I'm 54 if u have the uncomfortable feeling all the time u would have constant AF.

This may require treatment with medication and or an ablation.

If the feeling comes and goes in short bursts or u have an episode then it may be days weeks or months before u have another episode. Usually this can stop itself with in a few minutes or within 24 hrs

This is called paroxysmal AF (Atrial Fibrillation)

I had episodes of paroxysmal AF Following open heart surgery.

Treatment is the same almost beta blockers and anticoagulant treatment as there is a risk of stroke.

A lot of people have AF.

DruD13 profile image
DruD13 in reply toBigT2013

Thank you for this. I am on betablockers (have been for about ten years for panic attacks) but they don't think I need blood thinners. ? So that is pretty much as I expected but at times, I get a bubbling feeling in my chest - almost at the bottom of my neck if that makes sense. i'm not sure if that is significant and may be leading to something but I will see the cardiologist again in a few weeks so I shall just start writing a list of questions for him. Thank you for your help. Hope you are doing well. :-)

BigT2013 profile image
BigT2013 in reply toDruD13

The bubbling feeling is when your heart is having an episode and called Atrial flutter.

I am fairly lucky I have some medical knowledge. But my son is also a student Paramedic.

I am well and mine as all but stopped with the medication.

Ask lots of questions when u see cardiologists.

DruD13 profile image
DruD13 in reply toBigT2013

Thank you. Much appreciated.

BreakThrough56 profile image
BreakThrough56

H iI was rushed into hospital 3 years ago with suspected Heart Attack which is when I was diagnosed with PAF. Heart Attack was secondaty to PAF I am on Apixaban ( Gave up on Warfarin due to Hair loss) and have had nothing since, So don't worry. I gave up on all the other medication they gave me due to awfull side effects. and now keep OK

DruD13 profile image
DruD13 in reply toBreakThrough56

Thanks for your reply. Good to know you're keeping ok. I just need to get my head around all this. :-)

Rosei profile image
Rosei

Hello DruD13, I have AF and many other people I know, I play competitive bridge, sixty out of 100 of us have the same problem, so it seems to be fairly common. I must be lucky, when my pulse was 190 I couldn't feel it, that was while I was having a heart attack. Rosie.

DruD13 profile image
DruD13 in reply toRosei

Thank you. :-) Well they didn't say I was having a heart attack when I hit 190, they were just busy trying to get it down so I was given more tablets to take, they put something else in the drip and then squirted this god-awful stuff under my tongue which was the worst moment of all... but it seemed to do the trick. :-)

dawny1908 profile image
dawny1908 in reply toDruD13

I have adenosine in cannula for palpatations svt... Really weird feeling but only stats in system for 10 seconds and brings heartrate back down

CharlesL profile image
CharlesL

Hi Dru 13

I have an irregular heart beat, it doesn't seem to be influenced but my activities or thoughts, but I get by okay...I'm sure you will too.

Take care

C

DruD13 profile image
DruD13 in reply toCharlesL

Thank you CharlesL. That was most helpful. I think I just need to stop worrying so much! :-)

You take care too.

Broadgreen profile image
Broadgreen

I am 49, had heart attack just 4weeks ago + 3 emergency stents done . Right blocked 99% left 97%. I also have multiple sclerosis, have you experienced any relapses etc with your ms ?

inpain123 profile image
inpain123

Hi Broadgreen,

Sorry I haven't replied sooner but have not been in the right mind set to log on to my laptop for a while. I have not experienced any relapses with my m.s. as such but I seem to be having new "problems" which I didn't know could happen and as a result I have been referred to various other kinds of specialists. My biggest problem seems to be with my memory and attention - I just can't seem to focus on anything and feel almost as if I am walking around with my brain in a fog. I have been fortunate in that I had never previously had mobility problems, I still haven't but I have been falling over fairly regularly.

I was diagnosed with the m.s. when I was 20 and have spent all these years since thinking that I was one of the lucky ones and not experiencing relapses over the years but my specialist recently pointed out that - "with m.s., there's always something going on". I think what shocked me most was the fact that - according to my neurologist - the m.s. is now affecting the frontal lobe in my brain, ie my memory, my attention, my concentration, my mood swings, my cognition in general. Explains a lot really, I guess. Thankfully, it seems like the cardiologist has me on the right medication for my a fib but I will see him again next month to get the results of my echocardiogram. How are you coping? Sounds like you have been through a dreadful time.

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