Entresto, cardiomyopathy&afib - British Heart Fou...

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Entresto, cardiomyopathy&afib

Biglad1 profile image
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Been on entresto nearly 8 months last couple of months on highest dose. Bubble echo had ef at 37% 3months ago mri says its now 29% with no scarring just cardiomyopathy and persistantatrial fibrillation. Had very little symptoms (none) before I started taking it and now get pins n needles and dizziness standing up & fell hard once & knocked myself out, none of wich I did before I started taking it. Asked cardiologist if I could stop as I wasn't having symptoms b4 I started it and he said no but if it's not working then what's the point. Or try other medications. 1st time i had afib and heartfailure I was on spironolactone furosemide digoxin bisoprolol. Fed up now and gunna loose my job because of the low ef

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Biglad1
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theonethatgotaway1 profile image
theonethatgotaway1

I hear you. I feel like entresto hasn't worked for me either. My ef shot back up after the HA and HF up to 44% and was on the low dose. When they upped it to middle dose, not long after it dropped to 35-40% and get pins needles.. Waking up numb at times. Brain fog. Awful drowsey feeling. I have felt better since starting Dapagliflozin though.

But last night i had a episode of where my heart started racing uncontrollably at 100bpm (usually 65-75) and bp shot right up to 140/90 (usually 100/70).

Laid down but was still going on for about 15 mins. Not sure what this was. Ecgs and check up was fine.

BigBen_ten profile image
BigBen_ten

Discharged from hospital on 22nd July with ef of 20%.Consultant stopped the furosemide and now on Spironolactone,dapagliflozin, bumetanide(reduced to 1mg pd)apixaban,carvedilol,and recently added enalipril.Recent MRI showed ef upto 35% a heart rate down to 66 from 90 atdischarge.Been slowly increasing excercise and feel much less tired daily.so so far so good..sorry you've had probs mate..it's a rocky road at best.

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