Just seaching for some support. My husband was diagnosed with heat failure dialated and arrhythmia cardiomyopathy in August age 38. He was critical but now he's out of heart fallure. He's had an ICD fitted and various amounts of tablets. We have two young children both with special needs who are finding life very different as we all are. He used to work none stop come home grab cuddles before the kids where in bed. Now he's not doing much off sick and awaiting appointment after appointent the next being scans and restpiritary testing. And then the orginal consultant who admitted him in July assuming he'll be looking at where he's at health wise. I just feel like our lives are on hold nobody really supporting the family as a whole and no support mentally. We've read numerous statistics and they aren't good but professional tell us not to read them but of course we will. They give 12 months to 10 years but I worry the consultant gave two diagnosis and told us there' only manaing the diagnosis or a heart transplant because his heart is so weak. So we go from week to week wondering if things are the last times.