Accessing vanished posts? What words ... - British Heart Fou...

British Heart Foundation

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Accessing vanished posts? What words cant i mention!

roughquest profile image
10 Replies

Hi, Ive been trying to access some potentially useful threads (including one vanished this morning!) so I’m just enquiring if you can view the banned posts? Or what “not” to post on here!

In April 2021 something occurred post something I was happy to have injected in me, beginning with an A. I even had two subsequent top ups begining with a P. Regardless my health was quite life changing for a 46 year old.

However it has affected my lungs and breathing, potentially damged my cardiac system in the process. Its this cardiac side I’m investigating. This week I have had a cardiac MRI and (drug induced) stress test in the really quite promising Royal Brompton. Pleasingly they let me leave too, which is always a good sign! I have had a CPET test this year in a different hospital, but have had no interpretation from my consultant or his department.

So any tips on how not to put my foot in things!

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roughquest profile image
roughquest
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10 Replies

Dear roughquest

A warm welcome to you and your first { of many we hope } posts, I hope that you find all the support and information that you need.

The question you are asking { in a roundabout way } will end up being taken down as soon as it reaches the level that would be of any help to you.

There are many reasons for this in the past that continues { in part } now.

Links between what certain products do and its outcome for individuals are not encouraged

What you are asking maybe used as backup for something else { benefits , suing culture etc }

I understand where you are coming from and want to ask, you just won't be able to do it here I am sorry to say.

You can PM me if you want any other details.

Other forums on HealthUnlocked allow you to discuss this, the BHF doesn't .

Take care

Tos92 profile image
Tos92

Hi roughquest

You’ve already been given some good advice. As Hidden said, the treatment is most likely to be the same or similar despite what caused your lung and heart issues. Maybe you would benefit from making a new post outlining what your heart condition is, your symptoms, and the medications you are on without mentioning the cause. People who have lived experiences of your particular heart condition or the condition you are being investigated for will be able to advise you / suggest further.

All the best.

Tos

roughquest profile image
roughquest

Thank you Heartifact, Blue, Tos. I have only just been referred to cardiac so I’m finding out as I go along!

I understand the reasons above - if moderators could lock these topics to new replies, at least they still could be searched as they still come up in searches on this site and may help others.

Obviously to anybody who thinks this scenario sounds like just me, please shout!

roughquest profile image
roughquest

Run in the park, missed your post! I only had the scan Monday, no results as yet, but promising means “wants to help” versus “an inconvenience, have you thought about stopping smoking/loosing weight” help of my previous local NHS hospital. Ive been under respiratory, but MRI’s have indicated a swollen heart which has subsided to normal.

Prior to things going adrift I had a normal lifestyle, plenty of travel, skiing, hiking etc. Diet wise I’ve pretty much been a pescatarian my whole life (when i was a kid it was just odd, not a diet!) and despite what my local hospital thinks I don’t smoke. I’m a regular sized guy late 40’s, but now with high blood pressure (150/100) breathless, cant run or climb stairs without a struggle, generally fatigued. Due the nature of my occupation, I’m regularly medically checked, so these symptoms havent just crept up on me, they were an overnight change. Id quite like it to change back!

Carercmb profile image
Carercmb

Hi my thoughts are it isn’t irrelevant if others could avoid and benefit.However is it proven?

Carercmb profile image
Carercmb

I agree and also think it’s wise to avoid panick until proven.

DiggyDoggy profile image
DiggyDoggy

The only thing I would like to add is that almost everything we were told by the authorities was the main source of misinformation, and some of the motives for the providing of said misinformation were clearly detailed in certain whatsapp messages by one of the people in charge.

Efka profile image
Efka

Hi sadly I think no matter what it will get pulled as many has said. Crazy but true! I will ‘throw a few names at you’ hoping they will make it through and be of some use.

Aseem Malhotra still sees clients privately.

‘The York Cardiologist’ also seem good.

The flccc has for me by far the clearest treatment guides and an incredible wealth of interviews and videos.

If I’m teaching you to suck eggs I apologies and I truly hope you can find better health and help.

roughquest profile image
roughquest

Efka - new news and old news there, much appreciated 👍

As I mentioned earlier, like most people I’m not after blame, just a diagnosis so I can adjust and plan going forward ❤️

DiggyDoggy profile image
DiggyDoggy

Yes. Truth gets banned, misinformation doesn't.

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