Good morning Hope your all keeping well.
I was speaking to a ex paediatric cardiac nurse and she said neither she or the cardiologist she worked with had heard of a young person having HCM and aortic root dilatation.
Haa anyone got any thoughts on this please.
I would ask how long it is since she worked in cardiology. Some years ago the wife of a director came up with utter rubbish in relation to my diabetes. I subsequently found out that she had quit nursing twenty years previously. Out of date and out of touch.
Do you or a family member have these conditions?
Last year, left when she had her baby. My husband has HCM but no aortopathy that we know of in the family. I was a little surprised when she said that as he is at GOSH and nobody had mentioned this before.
Maybe she's an ex nurse for a reason... a quick Google of pediatric HCM brings up quite a lot of results.
Thank you as always words of wisdom here 🙂
if I’ve learnt anything over the last year it’s that not all cardiologists and nurses are built the same and some know very little and only a very few know a lot.
I agree with Hidden
Even my Cardiologist of many years experience freely acknowledges, he is no expert in caring for patients living with my rare type of angina.
He's 16. Thank-you
Migraine and heart conditions 
Information sharing - uncommon conditions
Gestational diabetes and heart conditions 
BUPA and pre-existing conditions
