Types of conditions : Good morning Hope... - British Heart Fou...

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Types of conditions

Livelovelife56 profile image
7 Replies

Good morning Hope your all keeping well.

I was speaking to a ex paediatric cardiac nurse and she said neither she or the cardiologist she worked with had heard of a young person having HCM and aortic root dilatation.

Haa anyone got any thoughts on this please.

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Livelovelife56 profile image
Livelovelife56
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7 Replies
MichaelJH profile image
MichaelJHHeart Star

I would ask how long it is since she worked in cardiology. Some years ago the wife of a director came up with utter rubbish in relation to my diabetes. I subsequently found out that she had quit nursing twenty years previously. Out of date and out of touch.

Do you or a family member have these conditions?

Livelovelife56 profile image
Livelovelife56 in reply to MichaelJH

Last year, left when she had her baby. My husband has HCM but no aortopathy that we know of in the family. I was a little surprised when she said that as he is at GOSH and nobody had mentioned this before.

Maybe she's an ex nurse for a reason... a quick Google of pediatric HCM brings up quite a lot of results.

Livelovelife56 profile image
Livelovelife56

Thank you as always words of wisdom here 🙂

if I’ve learnt anything over the last year it’s that not all cardiologists and nurses are built the same and some know very little and only a very few know a lot.

Milkfairy profile image
MilkfairyHeart Star

I agree with Hidden

Even my Cardiologist of many years experience freely acknowledges, he is no expert in caring for patients living with my rare type of angina.

Livelovelife56 profile image
Livelovelife56

He's 16. Thank-you

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