Mind is in overdrive: Diagnosed with af... - British Heart Fou...

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Mind is in overdrive

Sailblue profile image
10 Replies

Diagnosed with af and high blood pressure 6 months ago. Emotionally shut down. Try not to talk about it because family and friends don't understand how devastated I am at not being able to do more because of extreme fatigue, lack of sleep and intermittent chest pain.I am really worried at loosing my job and sometimes work through chest pain. I try to be grateful everyday. I would like to join a talking support group but cannot find one in my area.

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jeanjeannie50 profile image
jeanjeannie50

Use this forum as a talking group - that's what we're here for.

Friends and family listen to how you feel at first - then that's it. They'll never understand what you're going through mentally and physical, but we do.

There is actually a forum on health unlocked just for people with AF. I'll go and get the link to them for you.

Jean

Chappychap profile image
Chappychap

Facilitated support groups are unfortunately not all that common, no matter where you live.

But carve out some time from your busy day and put your experiences and feelings into words via a post on this forum. You'll find lots of sympathetic, supportive listeners; and the process of writing things down will help you analyse, prioritise and manage the emotional clamour that you're going through.

jeanjeannie50 profile image
jeanjeannie50

Here is the link to the AF forum. I'd copy your post and put it on there too.

healthunlocked.com/afassoci...

Jean

Sailblue profile image
Sailblue in reply tojeanjeannie50

Thankyou so much 😀😃

Hrty profile image
Hrty

You could try iTalk. It was mentioned during my rehab as potential support for the emotional side of things. You can do a self referral and they have online Congnitive Behavioural Therapy. I've also had a couple of 1-1 telephone calls with them. Might he worth a look.

Sailblue profile image
Sailblue in reply toHrty

Yes I will look into that. Txs 🙂

I feel for you and your predicament. I have similar issues mentally. With me I always had a weakness which I just assumed was not being fit. But now I know, it plays on my mind. I keep wanting to go back even to pre pandemic when I felt OK. It is hard. The trouble is that from the outside I look well. Even my cardiologist said on the last visit you look well. But inside iam screaming. You try and talk to people close to you and it can become a boring record. People say you have to find an interest to take your mind of it but if you feel aches and pains and breathlessness then your mind starts panicking and going into flight or fight mode. You then analyse everything trying to get back to some normality. Or normality for you. You then think the worst so you don't do anything. It is hard but you have to try small steps. But it might not be fast enough for others. My cardiologist does not want to see me for a year. She seemed happy but for me I just carnt see the positives. It a vicious cycle that goes round and around. Don't start me on blood pressure.Any way that's that's My winge over with. You take care

GrannyE profile image
GrannyE in reply to

It is horrible not being able to do things you used to think nothing of. The mental adjustment is hard. It is hard to let go.

GrannyE profile image
GrannyE

You are right. People who do not have these conditions just don’t understand how they can make one feel. It is not as if you have an arm in a sling or a plaster caste. As Jeanie says this is what we are here for.

Sailblue profile image
Sailblue

Thankyou that has made me feel alot better. I am so used to dealing with nearly everything emotionally on my own . This is the first time I have used a forum. Such kind messages and you seem to totally get it. 😃

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