Right-sided heart failure

[MelB51]

Hi all.

Have any of experience and/or advice regarding this condition? My recent Echo showed that I have this but I admit to be very concerned as the prognosis seems so poor, giving only around a year, which terrifies me.

Any medications recommended? I am currently on nebivolol, ivabradine, butmetanide, ramipril and a statin. Recently taken off endoxaban due to be hospitalised with a haemorrhage on my adrenal gland.

Any advice would be good.

[Bbleiche]

Hi Mel, sorry to hear of your recent diagnosis. You may find answers to your questions on this site pumpingmarvellous.org it is specifically for those of us who have been diagnosed with heart failure. Best wishes and I hope you find help and support.

[MelB51 in reply to Bbleiche]

I was in that community but I left quite some time ago because it seemed to me to be just for posting how great you were doing, how far you’d run and things like that so it actually had the effect of depressing me! Thanks for your reply though.

[rizal in reply to MelB51]

I find it great, lots of people who have been through the same as me who can advise on things I notice or feel.

[Fullofheart]

I can really understand your worry. Heart diagnoses are scary. I'm sure you know already that heart failure is not a very helpful term and googling it will only increase anxiety.

If you have the results of the echo it could be worth discussing the results with your gp and- or the BHF nurses on the helpline. They can explain in more detail and that can be reassuring.

Wishing you well 🌸

[Hidden]

Yes meln51 it is scary. The touble with all these heart issue. One glove does not fit all. My anxiety is through the roof. Iam trying my best to except and learn to live with it but it is so hard. My right side is impaired due to the epsteins. But I don't have heart failure. But the right side is inefficient. So what is the difference? I have had the epsteins since birth and therefore the body has coped but now the body is getting older what is next? Fortunately iam on only 2 lots of tablets, lisinopril and spironolactone. I will be managed with medication as surgery is too risky. Yes iam trying some things in my power like rehab at gym and talking therapy. But it is hard to see the positives. Trouble is i Google too much and all sorts come up. Sorry I don't have advice. But it is hard very hard. Some days good some days bad. I just feel like a broken toy. Like i read on another post. People look at you and you look healthy and wonder what is wrong, but deep down iam screaming. I currently try to just put one foot in front of the other and gently build myself back up.