Come out feeling worse than when I we... - British Heart Fou...

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Come out feeling worse than when I went in!

Heartfairy profile image
74 Replies

Well following 8 months of worrying about having a heart attack, it’s happened. Admitted to hospital for a week, had angiogram which was the most horrendous experience but no need for stent as the culprit artery is too small to stent so prescribed a lot of medication. This was my second angiogram this year and the first was a breeze compared to the second where I was heavily sedated (don’t know why as I wasn’t on the first one) and I subsequently fainted, put on two drips and gave the medics “a scare”. It was carried out at a teaching hospital so feel that I was butchered by a student! My right arm is severely bruised and swollen and been advised not to use it for 7 days. I was sent back from that hospital to my local one in an ambulance at 2.15am arriving back at 3.45am in the cold and dark. Since coming home, I feel vulnerable, scared, sad that I’ve to build up from a daily 5 min walk to 30 before starting cardiac rehab in 6 weeks. Im feeling more breathless than before but not sure if this is down to meds (tricagrelor in particular or bisoprolol) and although only 56 I am feeling very much like a little old lady. I’m simply scared to do anything, I worry im going to end up back in hospital where I heard and saw things I never expected. I was the youngest on the ward and feared just looking at some of the other patients of what’s to come in my future. Sorry for feeling so pitiful and anxious but should I feel worse now than when I went in. The whole episode has been traumatic and scary and I want to avoid ever going through this again. Any advice and positive assurances will be most welcome. ❤️

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74 Replies
Blackcatsooty profile image
Blackcatsooty

dear heart fairy

My sympathies to you regarding your traumatic hospital stay.

I am such a scardy cat regarding medical matters, I even get wound up over a blood test.

However, can I mention that my experience when I needed a replacement valve was really good. Yes I felt worse afterwards, but that’s just the accepted discomfort during my rehab period. And recovery just got better and better.

None of the in hospital tests were bad. Including the scan. The staff were just fabulous. And I was given a single room, so no issues with other patients.

I have fond memories of that week in hospital.

Best wishes

Sooty

Heartfairy profile image
Heartfairy in reply to Blackcatsooty

Hello Sooty thanks for your reply. I wish I could honestly say I wish I had fond memories. But I’m glad you had a better experience than I. Let’s hope however neither of us end up back there. It’s the breathlessness I’m feeling now that I feel worse about. The hospital experience I imagine will eventually fade but it’s the right here right now moment and this feels worse than when I went in so wondering if it’s side effects of medication and will it ease? Anyway thanks again, take care ❤️

vodkalover2 profile image
vodkalover2 in reply to Heartfairy

I had open heart surgery last December replacement mitral valve and tricuspid repair and I have felt more breathless since the op. Can hardly walk the length of myself. I would like to know why. I am asthmatic and have persistent rhinitis. Life is scary

HiveMind profile image
HiveMind in reply to vodkalover2

Have you been checked for Vasculitis?

Heartfairy profile image
Heartfairy in reply to HiveMind

No ❤️🧚🏼‍♀️

Heartfairy profile image
Heartfairy

Oh thank you so much. That’s so encouraging. Why do I feel the breathlessness though which I didn’t really have before - could that be the meds?

Qualipop profile image
Qualipop in reply to Heartfairy

Is it a feeling that you might have asthma; like you're not getting a deep breath? Or is it like proper breathlessness; panting when you do anything. If the first it's the ticagrelor/ I couldn't stand it. I was getting enough air it just felt like I wasn't. I got the ticag swapped to clopidogrel. NO more problems. I was on bisopralol too which dropped my BP so low I could barely get out of the chair. Not particularly breathless just exhausted. YOu must know your reactions are perfectly normal but the damage is likely to be minimal. Did you have an echo before you left? That would show how much damage here was - or wasn't. Your GP can tell you that. AFter my first angiogram, like you my arm was horrific. It was black from wrist to elbow for weeks. I suspect they loosened the pressure bandage too soon. For my second angio a few weeks later there wasn't even a pin prick mark. Think it depends who does it. If you ever need another , tell them how bad it was and ask for someone experienced.

Heartfairy profile image
Heartfairy in reply to Qualipop

Hello Qualipop, thank you for replying - yes it’s like the first! I couldn’t have put it better, I’m not panting, it is like I’m not getting a deep breath and I feel a bit tight. That’s exactly it. Oh gosh if it’s the medication then hopefully it can be swapped around. I’m also on the bisopralol but only 1.25 as apparently my cholesterol is only 2 point something. My hands and feet are cold and I’m a bit dizzy - none of which I had prior to prescribed medication. Your angiograms too….very similar experiences. Sorry you went through it but reassuring it’s not just me then. Thank you so much, I will certainly deal with this then tomorrow. Take care ❤️🧚🏼‍♀️

Qualipop profile image
Qualipop in reply to Heartfairy

I put up with ticagrelor almost until my second angiogram but begged my GP to change it. It's a very well known side effect. It may not be that but it does sound like it. Good luck.

Heartfairy profile image
Heartfairy

Thank you so much for being realist, encouraging and so true. I will keep you posted with progress. I’m determined to accept any help and support offered by the cardiac team and come out of hibernation next year a new me! Take care ❤️

Heartfairy profile image
Heartfairy

Thank you ❤️

Hello :-)

I am so sorry about your experience I think the angiogram has really not helped the way it was done and even though I know they have to learn how to do these procedures it is not good if you are on the receiving end and I can imagine this will have left a impact on you but one that will fade in time

I am also sorry you were on a ward and saw things that have now planted a seed will that be me one day but there is nothing that says it will as you are not them but you and even though you have had a heart attack you can go on to live a full and happy long life :-)

The medications can be a culprit of making us feel tired and I remember been on ticagrelor and when my Consultant after a year said I could come of them she also mentioned my breathing could feel better when I did as they can have that effect on you so they possibly will be the culprit

Having gone through all that and then to be taken home and feel just dumped it will have left you shaken up have you family and friends that you can tell them how you feel and get some support from them while you get on your feet , I hope you do have people that can support you emotionally more than anything from what you have said and of course you have here where we will try and help to :-)

It does feel like a set back but one you will get through try not to look backwards at what has happened but focus on going forward and remember it is early days so if you feel tired rest and slowly build back up again because you will with gentle exercise a healthy diet medications to protect you and just as important time to gain your confidence back again :-) x

Heartfairy profile image
Heartfairy in reply to

Hello BeKind, I knew it would be a matter of time before you would reply with your kind and positive words. Gosh I really can’t explain what a horrendous week it has been and I never want to go there again. It’s all very raw, scary and emotional for me but the responses so far have generated a few tears as well as smiles and you’re right I just have to look forward now and do what I’m told. I have a habit of wanting to run before I can walk but I am actually finding everything tiring and a big effort, as I said I’ve become a little frail old lady in a week. I don’t have much in the way of family but I do have a kind and patient husband and a group of special friends I can rely on but as I’m sure you’ll understand they all have their own families and issues to deal with but I’ll take on the support offered by the cardiac team and plenty of hugs from hubby. I hope you are improving following “the bug” and you have regained some strength. Thank you for the reassurance with the ticagrelor. Perhaps I just need to persevere with it. You take care and thanks so much ❤️

in reply to Heartfairy

Hello :-)

It sounds like it has been a horrific week I felt that as I read your post and I would have reacted just like you if not worse and when we have these experiences they are not just going to leave us it takes time and you have to give yourself that time and you must not run before you can walk you are really going to have to discipline yourself on that one :-)

I know the meds make us feel yuk but eventually one or two will get knocked of so yes persevere of I did I know you can to :-)

O the bug well it has left me tired and I don't want that again !

Thank you for asking :-)

I am glad Hubby is there and giving lots of hugs you are going to get through this a day at a time :-)

Dear Heartfairy

How sad it made me reading your post and the horrible time you have had.

I cannot add to the amazing answers that you have had already and the advise contained within them for you.

I am just sending a hug over the airways and just to add my name to the replies of folk thinking of you.

Take it slow, take it easy and the new you will soon be as strong and positive as the old one, { or better }

If we can wait for her then so can you

Take care you are in my thoughts.

Heartfairy profile image
Heartfairy in reply to

Hello Blue1958 I’m sorry I didn’t mean to make you feel sad with my post however I do appreciate your kind words and thanks for the airways hug - well received. That little bit at the end of your post brought a wee tear to the eye but you’re right I’ll wait patiently to come back from this. Please continue to look after yourself and thank you again for your support. ❤️🧚🏼‍♀️

Laurab101 profile image
Laurab101

Dear Heartfairy

Sorry to hear your news but hoping that some of the wonderful positively you give on this forum comes back to you

If someone else had put up this post, what would you say to them?

I can only suggest that you are kind, but firm, with yourself. The walking advice of 5 minutes plus a little extra is excellent. I take a walk every day. Sometimes it's easier than others but I try to notice the environment /sounds/scents around me, placing awareness beyond the physical responses (not always easy,) of breathing, heart etc and find that this focus helps calm the mind and I move at a suitable pace. Celebrate the fact that you are outside moving of your own volition and that you have been given a new day to enjoy. Take pleasure in returning home having accomplished your time/distance, the deliciousness of a cool glass of water and the joy of removing your boots!

I will look forward to seeing how you get on with your recovery.

Best wishes

Laura101

Heartfairy profile image
Heartfairy in reply to Laurab101

Hello Laurab101 many thanks for your reply. You’re right there should and I’m sure there will be pride eventually after completing the walks, I think that’s what makes me feel sad, is that prior to this, I walked miles with my dog, out for hours watching him chase squirrels in the woods and taking in the nature and especially at this time of year the beautiful autumnal colours and then BANG - 5 mins a day building upto 30! On the positive side, yep I’m most definitely still here but on the negative side I just can’t see how I will return to normal what with the current breathlessness and dizzy spells. It’s hard, it’s tough but those long walks feel a million miles away right now. Apologies for being a bit doom and gloom - tomorrow is another day and I may feel differently again tomorrow. Look after yourself and thanks I do appreciate the encouragement ❤️🧚🏼‍♀️

Shellac profile image
Shellac

Sorry you have gone through this take it one day at a time,big hugs to you ❤❤❤❤

Heartfairy profile image
Heartfairy in reply to Shellac

Hello Shellac thank you for your reply and thanks for the hugs ❤️🧚🏼‍♀️

Jackabee profile image
Jackabee

so sorry that you have been poorly. Hope you feel better soon.

Heartfairy profile image
Heartfairy in reply to Jackabee

Thank you Jackabee - take care too ❤️🧚🏼‍♀️

devonian186 profile image
devonian186

You are still young. Irrespective of your bad experience, by seeing the others in your ward you are motivated to ensure it doesn't become your future. When I went in for my heart bypass I was shocked to see that most everyone else in the ward was obese-or getting on that way-in their 50's and that for most it was a return visit from 10 years previously. They hadn't learnt their lesson.

I don't know your lifestyle, but do you need to lose weight (check your waist size as BMI is not the only measure, get more exercise, change diet, change to a less stressful job?

Heartfairy profile image
Heartfairy in reply to devonian186

Hello Devonian186 many thanks for your reply. I think this is why I feel this whole episode is a little bit unfair. Back in March when the medics thought I’d had a mild HA, everything was within normal range, weight, kidney and liver function etc. I never smoked and drink rarely, I may not have exercised briskly but I was always out with my dog walking - walked everywhere and then 8 months on it did actually happen. So yep I am angry, yep I do think it’s unfair but when parents and grandparents have suffered with heart disease then perhaps my cards were simply marked. I just think it’s now out of my hands. It’s so scary isnt it when things go so wrong. But you’re right with your advice and I do appreciate you taking the time to reply. Please continue to look after yourself ❤️🧚🏼‍♀️

Tindy2 profile image
Tindy2

Hi Heartfairy, I’m sorry you’re having such a bad time . I felt a bit like you when I had my second stent put in . I see you are worried about the breathless , I had that too . When I mentioned this to the cardiac nurse she immediately contacted my doctor it change the Tricagrelor, (breathlessness is a known side effect of Tricagrelor. ) I was changed to clopedogrel , which made a big difference. The breathlessness stopped almost immediately. You could ask your GP or cardiac nurse if this could be the cause of your breathlessness. Hope you feel better soon .

Heartfairy profile image
Heartfairy in reply to Tindy2

Good morning Tindy2 thank you for your reply. Yes I did wonder if that was the culprit. I thought coming out of hospital and being on the medication would make me feel better but I didn’t have this breathlessness prior to my HA so something changed whilst in hospital - either the prescribed meds or complete worry and panic which I know can have a massive impact on breathing. I just don’t feel I can push myself to do my daily exercise walks if I’m already breathless and then fear I’ll bring on another HA - gosh did your mind race at 100mph? I look at my black and blue arm following my angiogram plus all the bruises on my body and wonder how the hell has all this happened? I imagine we all wonder how we got here. Apologies I’m just having another self pity moment. Thank you for replying to me I will speak to the cardiac nurse tomorrow. Take care of yourself ❤️🧚🏼‍♀️

Tindy2 profile image
Tindy2 in reply to Heartfairy

I felt the same way, I was asking myself why I was so breathless doing the simplest of tasks, knowing I didn’t even feel like that when I had the HA . I had an echo 2weeks after the HA which showed no damage to the heart muscle and the stent was doing a good job so I wondered why I felt so bad. When the Tricagrelor was changed to clopidogrel I felt better almost immediately. I also noticed that the terrible bruising wasn’t as bad after the meds were changed. Hope this gets sorted for you .

Heartfairy profile image
Heartfairy in reply to Tindy2

Many thanks Tindy2, I’ll definitely have a chat with the nurse tomorrow and see if anything can be done. It’s not good for you but it’s good for me knowing I’m not the only one who has gone through this after coming out of hospital. Take care ❤️🧚🏼‍♀️

Coxtribe profile image
Coxtribe

I can fully appreciate your feelings @Heartfairy - not the most positive experience.I can relate to it having also been the youngest on the CCU and having a similar experience with the subsequent angiogram. My arm went in to spasm and it was an extremely painful procedure. The arm was also black and blue for a couple of weeks and very uncomfortable for a while but that does wear off I can assure you. I've experienced no long term effects.

Hopefully, the follow up care will be a more positive experience - mine certainly was. Good luck. 🙂

Heartfairy profile image
Heartfairy in reply to Coxtribe

Than you Coxtribe for reassuring me about the arm. Gosh compared to my first angiogram back in March I had a wonderful cardiologist who left me with two very small bruises on my wrist however this time, after expecting the same result it was a total nightmare what with sedation, fainting, having 2 drips, checked to see if I’d had a stroke - how could it go so wrong? I think when we feel at our lowest and most vulnerable every little thing has an impact on how we feel and we think we will never get better. So thank you as the thought of not having the strength to do everything I did before with the arm and my heart just makes me feel very sad. Yesterday was a good day, today not so but I can only imagine this is part of the recovery journey being on the heartie rollercoaster. Thank you again and look after yourself, I’m glad you turned a corner ❤️🧚🏼‍♀️

Fynndog profile image
Fynndog

Dear dear Thatwasunexpected, I love your turn of phrase , you always come up with something that makes me smile and sometimes weep. What lovely advice you have given Heart Fairy , I’m sure she will act on what you have told her. You must write a book it will be a best seller.

Fynndog profile image
Fynndog

So sorry to hear about your horrible hospital experience. You have survived to tell us your tale and some of our cherished Hearties will be here to give you sound advice.

Breathlessness is awful and fired sometimes by our anxiety even though we swear it’s not us that’s doing it. I did the same but it was also the meds kicking in and some had to be changed.

It is a scary time no one can understand that hasn’t been there . Lufe had taken a different route to that planned one but you are still here to pursue it maybe from a different angle but you will get there. Every good wish for speedy recovery

Heartfairy profile image
Heartfairy in reply to Fynndog

Hello Fynndog first of all what a beautiful little dog you look by your photo - very cute and secondly thank you for your reply. Your words are spot on and so true but the comments on here are so lovely and people so kind so I’m sure I’ll perk up. Today just doesn’t seem a good day but onwards and upwards eh! Thank you ❤️🧚🏼‍♀️

Fynndog profile image
Fynndog in reply to Heartfairy

yes Heartfairy you will certainly get good and honest advice here. We’ve all shared a Heart Event , maybe not the horrid hospital thing but they have stuck you back together and now we are waiting for you to rip the plasters off.

Yes second . My dear departed Tom my soul mate but he has a successor called Fynn . Glad Tom caught your eye he will be sending you love and healing from his happy place xxxx

Heartfairy profile image
Heartfairy in reply to Fynndog

Well here’s to Tom, Fynn and you. I’m relying on my dog to get me through this - he’s my little hairy soul mate plus hubby human soul mate. I’m lucky to have them. We never forget our little dogs though do we, fond and treasured memories and surely…..more adventures to come - take care ❤️🧚🏼‍♀️

Fynndog profile image
Fynndog in reply to Heartfairy

yes that’s the spirit - lots to come. Put that old hospital behind you. All the very best. I’ll be looking for some upbeat posts from you soonxx

Heartfairy profile image
Heartfairy in reply to Fynndog

Many thanks Fynndog ❤️🧚🏼‍♀️🐾

Nannysue1 profile image
Nannysue1

That was a lovely, thoughtful reply.

Nannysue1 profile image
Nannysue1

So sorry to hear of your rotten experience. It's no wonder that you are feeling low now. That would definitely have frightened the life out of me. You've been given some great advice on here and I cant add anything other than to say that I couldn't get on with bisoprolol because it made me breathless.

Take things easy, I'm sure you'll be able to build things up again, albeit slowly.

Heartfairy profile image
Heartfairy in reply to Nannysue1

Thank you Nannysue1 - yes it was simply awful and I never want to go back there again. You take care ❤️🧚🏼‍♀️

ETHEL103 profile image
ETHEL103

This is horrible for you.I do thing cardiac care is not what it was.There are exeptions but it's a hospital lottery as is all medical care IMO.

Heartfairy profile image
Heartfairy in reply to ETHEL103

Hello ETHEL103, I suppose I’m years gone by many folk wouldn’t have survived HAs and other heart events but modern medicine is fantastic when our bodies can adapt to it so I’m grateful for that however like you’ve said I too feel it’s a bit of a lottery where you end up hospital wise. My local hospital had kind and caring staff but the city hospital absolutely horrendous. Both however, have provided me with memories I want to forget but I do hope those ladies I left behind continue to be cared for and get back home with their families soon. I kind of think I’d accept this in my late 70s/80s not in my 50s but who knows, I suppose when you’re that age it’s still difficult to accept. We are all really young at heart aren’t we. Take care ❤️🧚🏼‍♀️

ETHEL103 profile image
ETHEL103 in reply to Heartfairy

Very true.

Mrsbeevintage profile image
MrsbeevintageHeart Star

Morning , I just saw your post and wanted to say I hope your feeling a little better ... I went through something simular on my 61st birthday after 4 day of waiting for an angiographydue to unstable angina too was in a ward of very old ladies and sadly at the end of life , I saw and heard things I really didn't want to and I came out of there hoping never to go back they found that my main artery was blocked at the crossroad so no stint with a list of higher dose medication with a recommendation of a very high dosage of staitins and no back up I havent seen a doctor or had any advice since , I have to say I never took the high dose of statins but that's another conversation .What I actually want to say is I read a book this week by a lady called Sally Bee called 'dont run faster than your guardian Angel can fly 'she has a very positive Facebook page where she talk to you every day , i think you might find something for your self there .she has suffered 5 heart attacks the 1st 3 at 36 and has been where you are worried and scared ...I hope it helps , take care x

Heartfairy profile image
Heartfairy in reply to Mrsbeevintage

Hello Mrsbeevintage, first of all I’m so sorry you have gone through a similar experience and secondly yes I’ve seen Sally Bee on TV over the years on Lorraine. I may get hold of her book as she has clearly shown there is light at the end of the tunnel and has certainly been on a difficult journey. Thank you for reminding me of her. Look after yourself and please ensure you get sorted out with your statin medication ❤️🧚🏼‍♀️

Patty2486 profile image
Patty2486

Heartfairy, so sorry to hear how awful your hospital experience was. You have been through a traumatic time and it’s understandable and familiar to be feeling the way that you do.

If the breathlessness continues please reach out to your GP and/or cardiologist. I went through the same for weeks after a HA; prior to HA I never had breathlessness and like you I am not overweight, don’t smoke and rarely drink alcohol. I found it difficult to function with normal activities. Hospital put me on mononitrates which have helped immensely. I’m not saying this is the answer for you (I’m not medically qualified) but I can empathise with how you are physically feeling. If you don’t feel well don’t ignore it like I did.

Wishing you a very speedy recovery and things will get better for you very soon. ❤️

Heartfairy profile image
Heartfairy in reply to Patty2486

Hello Patty2486, wow so you too had a similar case of breathlessness. It does make you feel uneasy as you just don’t want to push yourself in case you being on another HA. I will definitely speak to the cardiac nurse tomorrow. I was also given a spray in case of chest pain but when I checked it, it appears to have already been opened and used and it was prescribed by the hospital pharmacy- I’m not taking any chances by trying it, there could be anything in it! Anyway thanks for the support and you take care ❤️🧚🏼‍♀️

Breesha profile image
Breesha

To Heart fairy , from fairy godmother,

I am an old lady , be grateful for the swift attention you received , students have to learn and are supervised throughout , maybe your anxiety made your angiogram more difficult , it sounds like you had a very mild heart event.

You have not had a triple heart bypass, so be positive , this old lady at 80 , still works and is a volunteer fundraiser , see if a charity near you needs help , and try and re focus your life .

Heartfairy profile image
Heartfairy in reply to Breesha

Oh fairy godmother Breesha - I’m so sorry that you have gone through all of that but gosh what hope you have given me. Do you mind me asking but what age did you have your first heart event? Now you’re 80 how amazing and congratulations - I hope I get there!! I do appreciate students have to learn but on the day I didn’t want to be the Guinea Pig - selfishly I don’t want anyone experimenting with me, I was nervous enough but you’re right, it could have been worse but for me it was bad enough. I love your post to me and I will endeavour to dust myself down and try my best to recover and move forward. For now though it’s raw, scary and I’m still wondering if I’ll see 60 but tomorrow is another day. Thank you and you keep up the hard work. You sound like a spring chicken to me ❤️🧚🏼‍♀️

Breesha profile image
Breesha in reply to Heartfairy

My heart irregularity was first picked up 53 yrs ago , when having first baby, I resisted medication until I was 55 yrs old , my heart event was 2016 , we were abroad. I volunteer with a chap who had triple bypass open heart surgery at 65/ he rides his bike 5 miles and lives a full and happy life .

Ghost-233 profile image
Ghost-233

Dear HeartFairy I’m so sorry you are going through this. You are always such a positive helpful person to everyone else and I’m sure that positive side will soon resurface again.

I was 49 when all my heart related problems started and I remember thinking so this is what being grown up means! I suddenly felt old and very vulnerable overnight but here I am age 73 and still hating the whole thing but being grateful I’m here as so many of my friends have died- not from heart problems but from cancers MS and brain haemorrhage.

Very early days for you and you are still vulnerable but you have always handled your problems with common sense and dignity and that will come back once you recover from a bad experience. You know only too well all hospitals offer different experiences you were just unlucky.

Take all the excellent advice given and you will soon be you again.

Sending lots of virtual hugs and positivity your way.

Heartfairy profile image
Heartfairy in reply to Ghost-233

Hello Ghost-233. I am so sorry that you started with your heart events in your 40s and although you have probably had many ups and downs how amazing you are now in your 70s. Well done you for persevering and continuing when I know how difficult it can be to lose family and friends and feel as if the world is getting a bit more lonelier but hey you’ve cheered me up so mission accomplished! It’s encouraging to hear other ladies go through these very unfortunate events but reassuring to know it’s not the end and older age can be reached - not that 73 is old nowadays and it is just a number but we all want a good quality of life don’t we? Thank you for your kind words and understanding. Someone said to me the other day they liked this planet cos I’m in it which made me smile - well I’m finding this heartie planet a kind planet cos I am completely blown away by all these messages of support and encouragement I’m receiving. So thank you, take care ❤️🧚🏼‍♀️

Fullofheart profile image
Fullofheart

Hello heartfairyI haven't been through what you have been through but this last year I have been on a cardiac ward on 3 separate occasions and I can really relate to the fear that comes with looking around and seeing what you imagine could be your future. I'm 47 and, when well, am fit and active, and have a healthy lifestyle, so I have found this tough emotionally and mentally....but I'm definitely getting there and I'm trying to use that fear positively by channeling it into looking after myself.

I also try and focus on what I can do rather than what I can't (right now) and try to see the adjustments I've made as a positive change rather than a loss. It doesn't always work, but it helps.

Wishing you all the best with your recovery. I think the one step at a time approach advised by "that was unexpected " is a sensible one, put really well. I did something similar and built up my confidence without overly pushing myself, and it did work! 🌸

Heartfairy profile image
Heartfairy in reply to Fullofheart

Thank you Fullofheart, I’m sorry you too have experienced these things in hospital. It’s not nice is it. You sound like me - emotional! I hope you manage to stay out of hospital for as long as possible and continue on your path of good health and positiveness. Please look after yourself and stay strong ❤️🧚🏼‍♀️

Mtk1 profile image
Mtk1

Hi heart fairy, I can certainly relate to your experience,I had a heart attack in March and angiogram which was carried out by a surgeon being trained by a senior, it was a real struggle to find vein and insert needle and it was an experience I didn’t want again, my arm was so swollen afterwards the nurse had to sit next to me with their hands pressing on my arm to keep it down, I have since had another angiogram with another stent fitted which was a lot easier and didn’t leave me with a black arm for a month. What I would like to say is it does get better with time, after my second episode and stent 6 months after 1st I felt really down as I thought I was getting back to normal again and had felt good, but I have just built up my exercises again and have just came back from a 25 km bike ride and I feel great. I do hope you can take on board what others have told you and slowly build up your fitness as exercise is a great way to de stress.wishing you well Dave.

Heartfairy profile image
Heartfairy in reply to Mtk1

Oh Dave how amazing you’ve completed a 25km bike ride - well done Sir! That’s great after what you’ve been through and gives me such hope that I will be able to get back on my bike come spring time and I’m out of hibernation! I really need to move on from what I saw and heard, get this arm right following the most horrendous angiogram (like yourself) and resolve the breathlessness as well as try and not be too sensitive to every little twinge in my chest and back area. Right now I feel I have a mountain to climb but time is a great healer and I’ll let you know when I’m back on the bike! Take care and thank you ❤️🧚🏼‍♀️🚴🏻

marigoldb profile image
marigoldb

I too feel your thoughtful and realistic and encouraging answers to heart fairy just so encouraging to myself also. Though my OHS for aortic valve and single CABG was in 2019, I really feel it is mended and strong, though bp often low.

But I’m to undergo major op for revision of prosthetic L hip on Dec 7th, so hope the ticker copes with that. Just out of hospital after the hip dislocated for the 6th time. At last a lovely consultant saw me in there and listened!, life can be so unpredictable and scary at times can’t it?

Beatle45 profile image
Beatle45

Why were you worrying about having a heart attack for eight months? That worry could have contributed to what happened.

Heartfairy profile image
Heartfairy in reply to Beatle45

Hello Beatle45, I don’t know to be honest. I just had it in my head that it was going to happen, family history etc. My auntie died of a fatal HA over 30yrs ago, my grandad also and then my mum had heart disease at the same age I am now so I kind of anticipated the event. The anxiety did probably contribute and I spoke to my GP about how I felt but they suggested HRT as I said I’d been going through the menopause but I didn’t want to take anything that carried a risk of cancer and my cardiologist warned against it due to risk of blood clots (this may only be in my case - it may work wonders for any other menopausal ladies so please don’t worry if you’re already on it anyone reading this post) - this was my case so I’ve been left in limbo stressing for yes 8 months and bang….now it’s happened I’m now getting all the support and cardiac help on offer. I don’t doubt stress hasn’t contributed but I got no help in avoiding that, instead I was labelled with “health anxiety” need I say more. ❤️🧚🏼‍♀️

Harefieldfan profile image
Harefieldfan

hi Heartfairy. I’m sorry you had a bad time and hope you’ll be feeling much, much better very soon. Perhaps I shouldn’t say this, but I was a bit taken aback by your comments on older patients and ‘what’s to come’. I’m an older patient; I was 77 when I had my HA and in no way consider myself decrepit. I wish people would think a bit before they post things. Anyway, I really do wish you well for the many years you have ahead.

Heartfairy profile image
Heartfairy in reply to Harefieldfan

Hello Harefieldfan, sincere apologies if I upset you or anyone else. That certainly was never intended. When I saw the older ladies on the ward, I just felt extremely sad as they looked so poorly following their heart events and when I saw them needing help going to and from the bathroom, that’s exactly how I was feeling and being treated. I felt as if I’d aged 30 years in the space of a few days. Life wizzed by before my eyes and I felt scared and worried that I would end up relying on people for help like those folk. I’m glad you’re not classing yourself as decrepit and I don’t know you so would never say you are either but believe me those poor ladies in that ward were and appeared to be coming to the end of life and that’s what made me upset and sad. Please may you continue to lead as happy a life you can and I wish you all the best ❤️🧚🏼‍♀️

Harefieldfan profile image
Harefieldfan in reply to Heartfairy

Hi Heartfairy. Thanks for your reply. I'm just sensitive to what seems like ageism. It wasn't like that in my ward -- there were only four beds anyway, and as my event was mild, I was always able to get out of bed and go to the loo. There was one older woman (maybe younger than me!) who needed help getting up. I have two stents; the second had to be inserted months later in Harefield (hence my name) because the artery was blocked with hard calcium. There I was in a room with two beds, The woman in the other bed had multiple problems, including diabetes, but she ate sugary desserts, etc. Anyway, I really, really wish you well and welcome to this helpful forum!

Heartfairy profile image
Heartfairy in reply to Harefieldfan

Hello again, I’d never intend to be ageist and sorry if it came across like that - hey I know how it feels. I’m old to a 20yr old but hey the older the better. I’m just hoping I get to a real ripe old age. Glad we’re still friends. Take care and thanks for replying ❤️🧚🏼‍♀️

BC-10 profile image
BC-10

You have to self educate these days I’m afraid. Forewarned is most definitely fore armed. Relax. Don’t worry. You are your own doctor. There are SO much supplements and natural remedies available that you will be excited what they can do. Honestly. Love and peace to you ❤️

Heartfairy profile image
Heartfairy in reply to BC-10

Thank you BC-10 yes it’s amazing how much you learn about your body when hit with such an event. I hope you are looking after yourself and thanks for the comment ❤️🧚🏼‍♀️

Qualipop profile image
Qualipop

Brilliant reply. I might add that if at all possible, have someone with you the first few times; just to tell that brain it's "just in case". At first I was too s cared to go anywhere alone, especially driving. IT soon wore off as I Gained confidence. I desperately wanted that cardiac rehab for my confidence more than anything else but it was refused. I was unlucky to get a very biased nurse who decided instantly that, as a wheelchair user, I wouldn't be able to do anything. She didn't even ask why I use a wheelchair.

Qualipop profile image
Qualipop

Yes I agree but our area does NOT help wheelchair users at all. After about a year I was given the name of a group that did seated exercise but they had no cardiac training. I don't actually need seated. MY legs work perfectly but my spine has slipped so it's standing that's the problem rather than walking or moving my legs and one shoulder has arthritis too bad for surgery ( or for wheeling my chair but I can't get any help at all with that). I bought a mobility scooter but that means I always have to have someone with me to get it in and out of the car. So now, getting to he physio group under my own steam is impossible. I need a hoist for the car but can't afford one and the car's 13 years old anyway.

Dingledaw profile image
Dingledaw

I'm so sorry to read this. I hope you feel safer at home and can rest while your body and those bruises heal.Sending you courage and resilience.

nilmonisikdar40 profile image
nilmonisikdar40

I have been a patient in our local hospital and before that I was in the front line worker as a junior medic and then senior medic. During the recent time when I was unlucky to be misdiagnosed and consequently delayed treatment, I have sadly noted the power and influence of hospital mangers. The atmosphere is not conducive when patients arrive rather not knowing when and what is happening. Many of good doctors and nurses are leaving the profession because they feel that they cannot do their best in that atmosphere. Technology is improving no doubt but side by side the pastoral care and understanding are not keeping pace. I can understand and empathise with you.

Heartfairy profile image
Heartfairy in reply to nilmonisikdar40

Thank you nilmonisikdar40 for sharing. Please take care of yourself ❤️🧚🏼‍♀️

Astronomyrules profile image
Astronomyrules

Hello Heartfairy,

I just caught up with your post and am sorry that you are feeling so low as you have been so supportive to others. Your optimism and sage advice has comforted many, including myself. I just wanted to say that since my late 40s, (I am now 70), I have been in hospital a great many times with heart and circulation malfunctions, (the origin of which is genetic, not lifestyle), both via A&E and for elective surgery. Like you, I have had some bad experiences, but mostly very good ones, despite the extra aprehension caused by the former. On the first occassion I too was shocked at the condition, both physiscal and mental, of many of the older patients to the extent that, at the time, I felt that if I was going to die at least I would be spared their fates. I have come to realise that every hospital experience is different and that my reaction was my brain's response to the shock of what had happened. I am sure that you will regain your confidence and that your quality of life will improve weekly, if not daily. Be patient with youself and give your mind time to adjust. Wishing you all the best for your recovery.

Heartfairy profile image
Heartfairy in reply to Astronomyrules

Hello Astronomyrules thank you so much for your kind words and for telling me your story. These stories are encouraging when you hear that young folk with heart problems starting in 40s and 50s continue to live on and get to a great age. I mean 30 odd years on heart medication is pretty amazing isn’t it whereas in years gone by (even only 50yrs ago) heart events could be fatal end off whereas now your story and those of others like you are reassuring, I don’t doubt it’s not always been easy for you both physically and emotionally but the meds can keep us going over a wonderful length of time. As for visiting hospital - In appreciate the testing and help but there’s no place like home. Take care and thank you for sharing your story with us ❤️🧚🏼‍♀️

Astronomyrules profile image
Astronomyrules

Thank you for your reply. It is good to be able to offer hope an encouragement to others as well as to receive it when necessary. I only wish this forum existed when I was first diagnosed all those years ago. Warmest wishes for the future, Lauren.

Heartfairy profile image
Heartfairy in reply to Astronomyrules

Same to you Lauren - stay strong ❤️🧚🏼‍♀️

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