Entresto and icd: hi does anyone have... - British Heart Fou...

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Entresto and icd

coop61 profile image
coop61
β€’19 Replies

hi does anyone have a ICD and then got put on Entresto? If anyone has heard of this does it help the E/F! Just wondering as I have just got ICD and seem to be a bit short of breath! 🀞 it gets a bit better

19 Replies
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Dave678 profile image
Dave678

I’m on Entresto to hopefully improve my EF from its 30-35 range and not need an ICD fitting. Not sure about those who already have an ICD - so will be interesting to see your replies.

coop61 profile image
coop61 in reply to Dave678

Thankyou for your reply! How long have you been on Entresto? I went on it briefly but I needed a ICD fitted it did make me feel better so here’s hoping you can! I hope it makes a huge difference to you! I will ask the next time I speak to specialist πŸ‘πŸ»

Dave678 profile image
Dave678 in reply to coop61

I went on Entresto 49/51 last Sept then onto a higher 97/103 dosage a couple of months ago. Not had an EF check since Autumn last year when it was 30-35 so hoping the Entresto will help to give me a higher reading now. Good luck & hope all goes well when you speak to your specialist.

coop61 profile image
coop61 in reply to Dave678

Hi I went to see my specialist and I am starting on Entresto also ! Thanks for replying and 🀞 that it gives us all better E/F Keep us posted! πŸ‘πŸ»

Dave678 profile image
Dave678 in reply to coop61

Great stuff and good luck with it. One of the possible side effects is a bit of tiredness. I’m not aware of that myself but it can be useful using it as a reason if you just fancy a quick nap! πŸ‘

coop61 profile image
coop61 in reply to Dave678

Well I saw the specialist and I am starting on Entresto so that answers ghat question πŸ‘πŸ»

Blue1958 profile image
Blue1958

Dear coop61

I have had a CRT-d fitted and I have been placed on Entresto { middle dose } my fractions have already seen an improvement.

My breathlessness seems to be down to water around the heart and with tweaking the spironolactone that seems to be helping.

Take care

coop61 profile image
coop61 in reply to Blue1958

Thanks for your reply! I saw my specialist and she said she wanted to start me on Entresto also I think that is where my issues are! That is great news that there is a improvement and here is to a great E/F result for us all 🀞

Callista profile image
Callista

I have had an ICD for several years and was put on Entresto and Spirolactone a couple of years ago. It really helped. I walked 19 miles one day last month with no problems. Definitely worth a try to see how you tolerate it.

coop61 profile image
coop61 in reply to Callista

Hi saw my specialist today and I am starting the Entresto also ! Waw that is amazing all that walking 🀞 well done you! πŸ‘πŸ» 🀞 we all get great results with it! πŸ‘πŸ»

Cherrelleford profile image
Cherrelleford

Hey I have an ICD and on the lowest dose of entresto as can't tolerate the higher doses. I have a few other meds too. I've not had any issues. It hasn't raised my EF as of yet and I've been on it just over a year, EF has stayed at 15% . But everyone is different. Take care x

coop61 profile image
coop61 in reply to Cherrelleford

I saw my specialist today and I am going on to Entresto also ! 🀞 it helps us all and gets these E/F numbers up ! Every day is a new day we can all just do as the specialist think is best I do hope it start to get the numbers up πŸ™πŸ»

Eastwood25 profile image
Eastwood25

Hi, I have an ICD(Jan20) @ have been on top dose Entresto since Dec 19, I find it really has helped my EF has gone from 22% (July 19 upon diagnosis) to 35% March 22, soon as I started the Entresto I found it helped with the breathlessness- I do get very tired some days but I’m on 10mg of bisoprolol so could be the reason. X

coop61 profile image
coop61 in reply to Eastwood25

More good news at least everyone seems to be getting a increase so happy for everyone πŸ‘πŸ»πŸ‘πŸ»I am starting on it also so 🀞 will keep posting πŸ‘πŸ»

RufusScamp profile image
RufusScamp

I have an ICD and was put on Entresto (maximum dose)at the start of this year. My EF has improved from 20% to 60%. I'm quite pleased with it.

coop61 profile image
coop61 in reply to RufusScamp

Waw! That’s amazing! πŸ‘πŸ»πŸ‘πŸ» So happy to hear your good news ! 🀞 we all get good results as I am starting on it also πŸ‘πŸ»

Anon2023 profile image
Anon2023

Hi. I started entresto about 11 days ago. So far, no unpleasant side effects but I’m on the lowest dose. I probably won’t know until my echo in December if there’s an improvement in my ef but it’s worth a shot. Hope it works out for you.

coop61 profile image
coop61 in reply to Anon2023

Waw! Soo many people on this ! I was talking to the specialist and she was saying they done tests with this and they stopped it early as it proved to be soo good so 🀞Goodluck to us all πŸ‘πŸ»

Anon2023 profile image
Anon2023 in reply to coop61

I’ve heard excellent things about entresto and I’m lucky that they put me on it as I don’t fit the NICE criteria. Fingers crossed that we all benefit from it.

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