Speak in code if you need mental supp... - British Heart Fou...

British Heart Foundation

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Speak in code if you need mental support for the C issue

CrazyLif profile image
11 Replies

to whom ever it may concern. Having heart conditions and then contracting the C thing is frightening - I have been there… and yes it was disastrous for me. But warning to all, any of your messages that mentions the C word will be deleted, and no one will have the chance to give you the help or mental support you need. So please learn to speak in code, so you can get the support you need and not disappear down a mental rabbit hole of pure fright.

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CrazyLif profile image
CrazyLif
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11 Replies

Dear CrazyLif

We are all adults that have gone through some incredible procedures to enable us to be alive. many have suffered untold hardship just too be here.

I for one will not be talking in code of any kind, if you truly are suffering so then you have the exact same pathways as we all do on here to get help/ support and treatment for whatever the illness/ diagnosis you have.

I really hope that you have the support that you need to continue your battle with your illness.

I really don’t think that this is the right place to try to rally people to your cause, we are all ill to various degrees on here.

Your “mental rabbit hole of pure fright” needs to be addressed and not used as a fright or fight tool for others.

I really hope that you are getting the help that you clearly need, and this is from someone that is not medically trained.

Please take care.

CrazyLif profile image
CrazyLif in reply to

I completely agree, and it all makes me furious that we can’t talk openly. But at the time I needed help the most all my texts kept on being deleted, and I was not aware of it. So I am just warning people so they do not have the same experiences I did. We need each other 👍🏻

CrazyLif profile image
CrazyLif in reply to CrazyLif

I am not rallying people for a cause. I am just warning people so they can have the conversations they need without being deleted.

Poppy451 profile image
Poppy451

Hi yes I had it too and it was very scary. I don't understand why we have been banned from talking about it. I still haven't had the V thing because I hear of awful side effects from it but then again I am so scared of getting that other thing again.

Hello :-)

I am so sorry to hear you caught the C word which resulted in you struggling , I hope you are doing so much better now :-)

I think quite a few now have realised unless in code posts will get deleted , lets hope posts in code do not start going that way to

We all need support :-) x

MichaelJH profile image
MichaelJHHeart Star

In 2018 I had OHS for 4 x (Ace2BusyBee). In 2020 I had LBKA. In 2021 I had C. This caused C-toe. Today I lost approx. 0.5 of nails on big and middle from lo_n__g term effects... ☹️

Heythrop51 profile image
Heythrop51 in reply to MichaelJH

Your last sentence is worrying Michael. Is it related to your PAD?

MichaelJH profile image
MichaelJHHeart Star in reply to Heythrop51

They think it is either mechanical as more than one person has pushed me into something like the back wall of a lift or ongoing issues from C toe. Apparently they are getting various long term issues from C affecting different parts of the body. The redness and oedema you can see have only come on since I had the virus - in fact the first signs came two weeks after. I am actually very concerned about it...

My poorly toes...
Heythrop51 profile image
Heythrop51 in reply to MichaelJH

Did you do Ace2BusyBee? And how fast? I know you were a rocker!

MichaelJH profile image
MichaelJHHeart Star in reply to Heythrop51

Just under the 8 minute mark but some guys were around 7!!!

Heythrop51 profile image
Heythrop51

Yes, we could do posts in code and change the key each day! :)

Sub) ((/::us at yukky St if tf St uh-huh

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