Little boy with a serious heart condi... - British Heart Fou...

British Heart Foundation

50,164 members31,662 posts

Little boy with a serious heart condition needs help. Please read..

Lee_hartlepool profile image
0 Replies

Thanks for taking a second to look at this for me.

I'm currently 7 years old and have a serious heart condition, called a double inlet left ventricle. It means my heart doesn't have enough pumps and Chambers to function how it should. My condition is life threatening and life limiting, and will result in a transplant. I like to say I was born special. As a result I tire easily, my lips go blue, I have high levels of anxiety as a standard. Also my parents have to watch my temperature in bed as I fit due to overheating, which comes as part of my condition.

Since the age of 9 hours old I was rushed in for my first operation and have had numerous since on my heart and eyes as I also have just had my double catteracts done.

I have another operation to go and is 2 to 3 years over due because of covid and our living conditions.

Due to my illness I struggle to live a full healthy life and cannot make the stairs in my own home and have been forced to sleep down stairs in the back room with my parents. I cannot even get to my room with my brother and sisters to play.

I cannot have a stairlift as I also suffer from autism and adhd.

I NEED MY NEXT OPERATION ASAP BUT HAS BEEN PUT OFF DUE TO MY CAPACITY TO REST AND RECOVER FROM THIS HEART SURGERY IN THE PROPERTY IS TOO SMALL AND IS JUST NOT FIT FOR PURPOSE.

My parents have gone to numerous organisations for help, I have friends such as my occupational therapist, surgeons and specialists stating that I need a bungalow.

The problem is our areas council have not got the properties and have told me its going to be years before one may come up as they Don have any built yet.

I'm having to take matters into my own hands, hence the go fund me page.

My sister Arianna who is 9 is also poorly and suffers from Charkot Marie tooth disease, a neurological disorder that effects her bones tenant's and growth. She struggles with stairs too. She has also had her friends from hospitals and organisations backing she needs a bungalow too.

Our old home we moved from last year, we were moved from with immediate affect as the landlord had work done and was condemned straight after. As landlord or council failed to secure our things in the house till we got accommodated we lost everything, from the washing machine to our beds and clothes. including memories and my toys.

We were made homeless and had to spend days sleeping on floors with no mattress due to council struggling to find us anywhere temporary. It sucked.

Our home at present I cannot make the stairs so I sleep down stairs and my sisters bedroom is tiny at only 45 sq ft they have to climb through their bunk beds to enter ther bedroom causing my sister to cry on a night in pain with it flareing her cmt up.

What I'm hoping to do is find a home that is suitable which is a 3 or 4 bed bungalow from a private landlord and pay a bond and the top up of rent per month for 12 months, till hopefully my council can have something arranged for me. AS years and years of wait isn't an option at all for my health in my current home. I haven't got the time to wait I need my operation and our family's stress to stop with housing. I want to be able to play in my own bedroom with my big bro and 2 sisters.

If anyone can please help me. I would really appreciate it.

Thanks for reading.

My link is.

gofundme.com/j233ja-please-help-me-find-my-home

Written by
Lee_hartlepool profile image
Lee_hartlepool
To view profiles and participate in discussions please or .
Read more about...

You may also like...

Homeschooling whilst coping with heart conditions - tips?

months, we didn't leave our property for 190 days and I was also coping with heart wobbles. It....

Takotsubo cardiomyopathy discharged yesterday after heart attack I need help Re medication please

heal my heart? The dye test didn’t show any blockage at all in my arteries so could my heart heal...

Heart condition and non heart surgery

procedure. Has anyone had and non heart surgery with a similar heart condition please? Thanks

Fasting with a heart condition

Asian community, diabetes is very common. We also seem to have a higher prevalence of Type 2...

Studying at the medical school, having a heart condition

health and epidemiology due to multiple health issues including a heart condition at the medical...