“Heydes Syndrome” - Just another one to add to the myriad of new words I’ve learnt in my so far short but eventful heart journey . Was rushed into hospital on Saturday severe breathing problems coughing up blood , I’d been diagnosed as anaemic in the week very low HB believed from a GI bleed !! More new words ! Any how after discovering a bucket full of fluid in my lungs things began to improve . I saw an on call cardiologist who read my notes and instantly diagnosed Heydes Syndrome directly caused by aortic stenosis! ( a side dish if you will ) And once valve surgery is complete the syndrome / the bleeds stop ! The evidence is compelling ( apparently) But In the meantime it does add another layer of scary to the wait for the surgery which is the only option to stop the Heydes syndrome .
So ……. if you experience low HB and have AS perhaps drop the name into the conversation - my Gp when I spoke to her said she kicked herself for not realising , but it as it is unusual- yet with AS it’s an added extra so one to watch out for .
On the plus I’ve now got my review meeting Monday with cardiologists and surgeon fingers crossed ,I hope for a small step forward .
Stay well people
CH
Low Heart Rate on Bisoprolol 
Doubts about Cardiac Rehab
Eating Low salt while abroad with dilated cardiomyopathy 
Aspirin is giving me doubts about surgery
worried about hubbys chest pains 
