Need some comments please : Hi all... - British Heart Fou...

British Heart Foundation

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Need some comments please

Hazel1010 profile image
Hazel1010
•5 Replies

Hi all 😊 new to he realms of heart issues and really need to talk , I’m have episodes of atrial defib , crazy heartbeats , felling really weird although no pain just a pressure on my chest and being given the runaround by hospital and my doctor

I’m terrified and no one has time to talk , what is happening to me , I can’t get appointment until end nov for heart clinic , I’ve been rushed to hospital 5 times now with sustained heart beat of 160 and very high blood pressure

These episodes have gone from 1 every fortnight to 3 or 4 a day ……any comments more than welcome

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Hazel1010 profile image
Hazel1010
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jeanjeannie50 profile image
jeanjeannie50

Hi Hazel there is a forum on Health Unlocked specifically for people with atrial fibrillation. You may get more responses if you put your post there:

healthunlocked.com/afassoci...

Hazel1010 profile image
Hazel1010• in reply tojeanjeannie50

Thank you 😊

Loveswimmimg profile image
Loveswimmimg

Hi, I really feel for you. I suffered from AF with the same symptoms, until I had my ablation. The best advice I can give you is to try not to panic when you get one of these episodes. If your symptoms have been diagnosed as AF with no other heart conditions then it is not life threatening and getting stressed will make it worse. Try to breathe deeply while it’s happening. Secondly, when you are not having an episode, think about some lifestyle changes if you haven’t already. You could try cutting out known triggers such as alcohol, caffeine and chocolate. Drink lots of water, this is very important. Try to go for a walk daily. And get plenty of sleep.

When you finally get your appointment, ask the consultant about the possibility of catheter ablation as a solution to your condition. I assume you are already on a blood thinner and a beta blocker such as Bisoprolol and possibly other drugs. If not you should at least be on a blood thinner so ask your GP.

AF is very distressing but usually not life threatening on its own, so try not to worry. Good luck!

Andy-1961 profile image
Andy-1961

Hi Hazel ,

Really sorry to read about what you are going through and I can relate to how you feel having only being diagnosed 3 weeks ago myself. During an AF attack the best thing I could and did do was to get to A&E as I felt very poorly. I was on the middle of the attack so doctors were able to diagnose the condition very quickly and put me on blood thinners and beta blockers immediately. This seems to have regulated the condition for now but there have been side effects which are starting to settle down now. I am not sure if you are on medication but think you need to be,

I too have lots of questions and have immersed myself almost to the point of obsession with knowledge . Sometimes not a good thing. Like you my Blood pressure is all over the place. I have need on medication to control this for years which again can be a cause of my AF . As love swimming has said an ablation may be something to consider and also trying to identify what triggers your condition is important too . There is a very help guide to living with AF on the foundation website which I recommend.

I am not sure that this is much help but just wanted to reassure you that you are not on your own with this . It is scary but once you come to terms with it there are ways it can be managed.

One of the biggest frustrations at this time has been trying to get so see a GP and having to rely on phone consultations which are not easy to get . Sadly it is not difficult to see why A&E ‘s are under such pressure.

Regards

Andy

Hillbillybeat profile image
Hillbillybeat

NO, just No. Cut the crap, this would be simply the most challangable subject to work. It disgusts me.

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