First post!: I have read a lot of posts... - British Heart Fou...

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First post!

Finnbert profile image
12 Replies

I have read a lot of posts on here and think it’s now time to share my story. It has been a difficult year. I have been hospitalised four times this year and consequently been diagnosed with diastolic dysfunction, atrial fibrillation and lastly microvascular angina after a two week stay. I now take a myriad of tablets for these conditions and my hypertension.

My question is does anybody else find that they have really weird ‘headaches’ with ringing in the ears. The ‘heads’ I find difficult to describe as they are not like a normal headache but feel like inside my skull is trying to push out!

Thank you for reading my woes😊

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Finnbert profile image
Finnbert
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12 Replies

Sorry to hear you've had a 'year of it' - never nice.

The ringing in ears is more typical of Tinnitus - but as for the headaches, that may be an indication that the medicinal cocktail you are on are not 'suitable' for you.

In my early days of HF medication I was given a drug (can't remember the name right now) which made me feel unwell almost from the off, inlcuding nausea and headaches. I stopped almost immediately and contacted my Cadrio NP, who then issued another drug that done the same job.

I suppose I am saying, give your GP or Clincian a ring and explain your concerns.

Finnbert profile image
Finnbert in reply to

Thank you that’s helpful I was thinking I should ring my cardio nurse.

Hello :-)

I do not have the answers to your questions but know other members will but just wanted to say Welcome and I am sure now you have done your first post you will find this Community so helpful amd members so supportive :-) x

Finnbert profile image
Finnbert in reply to

Yes I have seen how members are supported and helpful. Hopefully when I have more understanding I will be able to be helpful.

in reply toFinnbert

I am still learning about it to :-)

But I think just letting people know they are welcome can go a long way until we learn more about it all and I hope your responses have helped you to feel welcomed :-) x

Bigsock1234 profile image
Bigsock1234

Yes get awful ringing in ears ans headache, I'm taking bisoprolol and ramipril

Finnbert profile image
Finnbert in reply toBigsock1234

That’s interesting I am on bisopropil although my heart rate is naturally low,

Hearty21 profile image
Hearty21

Hi - Sorry to hear about your condition. Not sure about ringing in the ears. But headaches are most like to be from Angina medication (Nitrates). They usually easy off once your body gets used to them.

I was prescribe Isosobride mononitrate and I had terrible headache for the first few weeks but eventually it all went away.

VickyHK72 profile image
VickyHK72

I’mSorry to read about your difficult year. I’m on ramipril, statins (atorvastatin) And sertraline. I’ve been taking these since January 21 and since day 1 I have had tinnitus, pretty much constantly in both ears, and weird head sensations - not headaches as such but strange feelings of pressure. So much so that in the early days I went to my GP several times but he concluded it was just the meds. When I mentioned the tinnitus (and at the time I also had some vertigo, probably from BPPV that I was getting over) I could see him thinking about a auditory nerve tumour (something id already googled!!! If you’re anything like me, don’t google. It’s the reason I’m on sertraline!!) but my gait was fine and I genuinely think it’s just the meds. I have really got used to the tinnitus now and have to say I don’t notice it much anymore, whether that’s because it has lessened or I’m used to it, I’m not sure - but it’s very bearable now. Good luck x

Fynndog profile image
Fynndog

Hi Finnbert sorry to hear about your horrible year. Mine has been the same. I’m no expert but most of my problems have been caused by medication. It’s very difficult to root out the culprits . Sometimes it’s just initial problems that resolve after a while but like myself they can be ongoing . I have a feeling one of your meds is not agreeing with you. Have a good read of the contra -indications included with your tablets.You just might read that very symptom that is bothering you.I have found that I have had to do all the running . Either COVID or some such has made it very difficult to get the necessary attention you need.

All the very best to you hope you find a solution quickly , feeling poorly for a day is a day to much xxx

Finnbert profile image
Finnbert in reply toFynndog

Thank you everyone for your responses. I did look at my medication and made a list of those that had my symptoms as side effects. I then spoke with my very supportive GP and we are in the process of cutting down on doxazosin. We will speak again in a few days.

Fynndog profile image
Fynndog in reply toFinnbert

That’s very good to hear. Meds are the most difficult thing to sort after a HA apart from the mental side of things. But both are very treatable and hopefully you’ll be back in form very soon. It does help if you have a good GP. All the very best xx

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