Prince Metal Angina

[Peajaya]

Hi everone, I am Peajaya, female. Is there anyone out there who suffers from PMA ?

Interpretion as title. I have had this nasty angina for almost 12 years. Would love to find someone to chat to who is in the same situation.

[Peajaya]

I have had this problem for over 11 years. They say that people who drink, are obese, on drugs and under stress are prone to PMA. None of which apply to me.

[Tig350]

Hi,I have been diagnosed with PMA. It started near 3 years ago . Although seeing Cardiologists , I’ve found treatments that help via my own research.

I have attacks late evening, at night and early morning. GTN spray normally works but I have had attacks lasting 40 minutes and repeated on and off all day. Cold weather and emotional stress can start attacks. I take 750 gms of Renaxa twice per day, it used to be a large list of medications including lercanidipine but side effects stopped them.

I think the term is batched as the worst days happen in a row !

Apologies if I have identities wrong but I think you have written about Whipple operations,

Mine was February 2017 !

[Peajaya in reply to Tig350]

Hello to Tig350 -it has been while since you wrote to me. I am so sorry it has taken me this long to reply. Please forgive me. I to, like you at the beginning of my attacks over 11 years ago were lasting 40m ins and some times more. However I am pleased to say that now they only last for about 3 mins and some times even less. By using the spray immediately I have actually managed to stop the attack altogether. Still feel very shaken after the attack.You mentioned the whipple operation. Have you had that operation as well? Would love to hear from you about it if you feel up to t. It is not an operation I would recommend to anyone.

I don't know the names of them but I gather there are other options if you look around.

While it may save your life you end up with a digestion and bowel problem for the rest of your life. It never clears up. Well it hasn't with me.

[Milkfairy Heart Star]

Hello Peajaya

I have lived with Vasospastic angina since 2012 the term now more commonly used rather than Prinzmetal angina or Coronary artery spasms.

The BHF has this information about Vasospastic angina.

bhf.org.uk/informationsuppo...

bhf.org.uk/informationsuppo...

[Peajaya in reply to Milkfairy]

Love your name - get fun. Made me smile which is what we all need. Thank you for pointing out the other name for PMA - have heard it but got so use to saying Prinzemetal Angina now - hope you dont mind me keeping it😊. As I have already said I have had my PMA for over 11 years but you might be a lucky one where it just disappears but if you do you now know that as time goes by the length of the pains will reduce - you almost et use to them - but of course everyone is different but I sincerely hope it applies to you. I too started out with 40 mins plus of pain but with the help of the spray they are now down to as little as 3 to 4 minutes. However I now seem to be having them once a week whereas there used to be weeks between each single attacks. I know have several attacks n a row- fortunately all small but last week I had six in a row and anted to talk to hers who have had the same problem.I have not reported it as I dont really know who to go to because I suppose I am getting so ed up with hospitals. We shall see what happens. Thank you for being there - I appreciate it.

[Milkfairy Heart Star]

Hi Peajaya

You might be interested in this international group of Cardiologists who are trying to come up with agreed definitions and ways to diagnose non obstructive coronary artery disease NOCAD.

How was your vasospastic/Prinzmetal angina diagnosed?

covadis.online/

I wish I could say that my vasospastic angina was well controlled. Unfortunately mine is very fickle.

I feel over last Tuesday and was sent to hospital for an xray. I am still in hospital on IV GTN as the pain in my foot set of my angina and my ECGs showed some changes.

I suggest you ask your GP to refer you to a Cardiologist who has some knowledge and understanding of NOCAD so you can have a review of your medication.

[Peajaya in reply to Milkfairy]

Sorry to hear you are Hospital - hope you are out soon. When I got my first pain , 12 years ago, I was blue lighted to hospital where they found nothing re the pain but on the scans they found a shadow on my pancreas. After the cancerous part was removed by having a Whipple operation, (which I would not recommend to anyone. Try and some other way of dealing with it. There are new ways but I don’t know what they are) I was still getting pains every month or so. About 4 years ago we were in Portugal when i had another attack - a very good Doctor there suggested I looked up PMA and the symptoms were exactly what I was getting and had been then for years. The Whipple operation left me with a serious bowel problem as well as a serious bile duct problem. That is why I do not recommend the Whipple operation to anyone.Ask questions before you agree to having- I trusted the Doctors and didn’t ask enough questions.

On top of that I have had 4 different types of breast cancer and I probably have the dreaded gene which at mo can’t remember its name. I was told to expect more cancer as I get older. Will look into NOCAD after posting this to you.

What have you done to your foot? Have you done anything to the bones?

[Milkfairy Heart Star in reply to Peajaya]

My goodness Peajaya,

You have certainly been through the mill. I am so sorry to read what you have been through. Whipple surgery is very drastic and I an sorry it's caused you on going problems.

Another thought for you. Chemotherapy can effect the small blood vessels of the heart causing microvascular dysfunction.

The symptoms of microvascular dysfunction are very similar to vasospastic angina.

Cardio oncology is a new developing field of Cardiology.

You might find this information helpful.

rbht.nhs.uk/our-services/he...

My foot thank goodness only had a hairline fracture. It has been stapped up, my enforced bed rest has meant I have been able to give it a chance to heal. I am just beginning to weight bear again now.

I was hop along for a while.

Sending my very best wishes to you.