How do you cope with the ups and downs?

[Love101cats]

I've been posting for a while and had so much useful advice from so many. I thought I was on the up until I started getting breathless again. It was frightening and more so when diagnosed with CKD. I have ha a busy week with telephone consultations with heart, kidney, g.p. as well as blood tests etc. The latest is my GFR is borderline s6tage 3 and 4, my thyroid not good and an ecg shows im back in AF. Im also low in iron. So im waiting for a 24hr monitor, an iron infusion and may be heading for cardio conversion. Im having blood tests at home every 2 weeks and being well looked after. The kidney specialist said " look after your heart because your kidneys depend on your heart and not the other way". Wise words. So if anyone is juggling the same balls in the air and has any wise words to add i would be grateful.

[Sunnie2day]

No wise words, I'm afraid, 'just' a ((HUG)) at what you're going through the now.

[080311]

Hi,I am no way near as bad as you. At the moment I am on iron and folate daily for the next 4 months, had my yearly bloods done and found have a problem, kidney function was down, had another blood test done last month and kidney function was up a bit have to have another blood test this month to check it’s still going in the right direction! Will check my bloods again March/April It’s a worry I know but I look at it that they know there is a problem so are helping, and watching.

I really hope you start getting good numbers from your tests, and your breathlessness eases.

Sending you best wishes Pauline

[Handel]

Virtual hugs from us. Just when you think things are getting better .......

Love and best wishes - Jan xxx

[Zindolo]

My advice would be to just try and focus on your blessings. I noticed your post mentioned that you are "well looked after"; this is a HUGE blessing! I am completely alone in this world now. I found out I last summer that I required open heart surgery to replace a calcified bicuspid aortic valve. So I did that on November 3rd. I even had to lie to them about having somebody to take care of me when I got home from the hospital because the surgeon had mentioned to me that they would refuse to do the operation if I told them I didn't. Fortunately it was all somewhat easier than I thought it would be once I got back to my apartment, but the 10 night stay in the hospital was quite a hellish ordeal. Anyhow, after 9.5 weeks I feel like I'm going to be okay, but I just wish I had some sort of emotional support system. I have nothing aside from a few email friends. BUT, like I said, just try to be glad for the things that you DO have and not worry too much about what you don't have and maybe you'll feel better. That's what I do; sometimes I even think about the advantages of being alone in the world. For example, I can post pictures of myself on those dating apps now without having to worry about somebody I know seeing them! Also, I blame some of it on the coronavirus. Hopefully I can find a way to make a few local new friends once this pandemic is over, if that ever happens.