TOE complete- not too bad!

[Meatless]

Hi everybody. Well had the TOE procedure this morning and you were all correct it really wasn’t as bad as I had myself convinced it was going to be! Throat is very uncomfortable to swallow at present and I’m very tired following the sedation but overall it was ok. Dr confirmed a moderate to severe leak of mitral valve and said before the procedure that I would require surgery however after the test they were talking about watch and wait as the heart function itself is excellent! I’m a bit confused by that to be honest so will probably have to wait now until the cardiologist writes out to me with full results and next steps! Anyway sure that’s another bit of the process ticked off. Thanks for all your support and best wishes for this morning, it is much appreciated.

[Magicfairy]

So pleased it’s done, and wasn’t too bad , have a good rest now for a few days, I liked that they tell you what they found before you leave the hospital, no waiting for weeks, take care 🙂

[Meatless in reply to Magicfairy]

Thank you Magicfairy, at least I’ll maybe get a decent nights sleep because of the sedative 😀

[Magicfairy in reply to Meatless]

Haha, hope so 😊

[Smarticus]

You will never forget the vile banana spray! look after yourself.

[Meatless in reply to Smarticus]

How right you are about that Smarticus!😀 thanks for responding.

[Kristin1812 Heart Star]

That’s really good it’s done. It was great to get your post, telling us exactly how it went. I hope the letter comes soon and you know exactly what’s planned.

Rest well!

[Meatless in reply to Kristin1812]

Thanks Kristin1812 I appreciate your response. Hope all going well for you. Take care.

[BorderMLH]

Well done! Pleased you had the sedation 😬 I am on the waiting list for an Ablation now 🥴 but hopefully for my type of AF I will be popped to sleep! Rest up & good luck 🤞

[Meatless in reply to BorderMLH]

Thanks BorderMLH the sedation worked really well! Hope you are not waiting too long on the Ablation, good luck with that and keep us posted. Take care.

[Fredders]

Great to hear that everything went well. I was monitored for years before I had my AVR surgery and was close to having the op one time, but they did an MRI and put me on watch and wait with more frequent testing (every six months instead of yearly) until it got to the stage where I needed surgery.

My throat was sore for a few days after my TOE, but soon recovered. Take care.

Wendy

[Meatless in reply to Fredders]

Fredders thanks for sharing your experience with me much appreciated. Part of me is hoping for a watch and wait approach however now that I know this valve will need fixed at some stage another part of me just wants to get on and get it done while I appear healthy enough at the age of 55. Feels a bit like I’m just gonna have this hanging over me in the future and won’t be able to focus properly on the rest of my life..

[Fredders in reply to Meatless]

I had my first AVR at 52 and I was still not really having any serious symptoms, this was 18 months after being put on watch and wait. My cardiologist wanted to do the op whilst I was still relatively healthy as he reckoned I would recover quicker, rather than waiting until it got a lot worse or it became an emergency op. Hopefully they’ll do the same with yours. Keep us posted.

Wendy

[Meatless in reply to Fredders]

Thanks Fredders. I take it when you say first AVR that you have had another since? Was it a repair or replacement do you mind me asking?

[Fredders in reply to Meatless]

I had to have a replacement. Unfortunately the tissue valve started leaking a couple of years after my op. For the second one I had a mechanical valve fitted as I didn’t want the prospect of possibly having to have another op, as I had to have my spleen removed when it decided to start killing my red blood cells, which means I have a compromised immune system and therefore at greater risk if I get an infection - great fun at the moment!

Wendy

[Meatless in reply to Fredders]

Ah Fredders sounds like you’ve been through the mill alright but hopefully we’ll recovered and doing well now. I’m really hoping I’m suitable for a repair but we will see what they all think when all of my test results are considered. Thanks again.

[Thanksnhs]

Glad to hear it all went well take care char

[Sunnie2day]

I was given ice lollies 'at will' (meaning a near endless supply, all I had to do was ask) and soft ice cream, soothed like nothing else does. Not sure if they still do that ice lollies thing but you know the old saying: don't ask - don't get.

Half-joking but it's worth asking if you can have ice lollies, and especially ask if it's ok to have them 'at will' when you go home.

[Meatless in reply to Sunnie2day]

Yes Sunnie2day lots of cool lollies for me they said (although maybe they didn’t mean magnums😀)...ah well too late now!

[Sunnie2day in reply to Meatless]

Ooooh, Almond Magnums are my nemesis, I know I put on at least a stone from just those alone! But sooooooooo good, so so so good!