Hi everybody. Well had the TOE procedure this morning and you were all correct it really wasn’t as bad as I had myself convinced it was going to be! Throat is very uncomfortable to swallow at present and I’m very tired following the sedation but overall it was ok. Dr confirmed a moderate to severe leak of mitral valve and said before the procedure that I would require surgery however after the test they were talking about watch and wait as the heart function itself is excellent! I’m a bit confused by that to be honest so will probably have to wait now until the cardiologist writes out to me with full results and next steps! Anyway sure that’s another bit of the process ticked off. Thanks for all your support and best wishes for this morning, it is much appreciated.
TOE complete- not too bad!: Hi... - British Heart Fou...
TOE complete- not too bad!
So pleased it’s done, and wasn’t too bad , have a good rest now for a few days, I liked that they tell you what they found before you leave the hospital, no waiting for weeks, take care 🙂
You will never forget the vile banana spray! look after yourself.
That’s really good it’s done. It was great to get your post, telling us exactly how it went. I hope the letter comes soon and you know exactly what’s planned.
Rest well!
Well done! Pleased you had the sedation 😬 I am on the waiting list for an Ablation now 🥴 but hopefully for my type of AF I will be popped to sleep! Rest up & good luck 🤞
Great to hear that everything went well. I was monitored for years before I had my AVR surgery and was close to having the op one time, but they did an MRI and put me on watch and wait with more frequent testing (every six months instead of yearly) until it got to the stage where I needed surgery.
My throat was sore for a few days after my TOE, but soon recovered. Take care.
Wendy
Fredders thanks for sharing your experience with me much appreciated. Part of me is hoping for a watch and wait approach however now that I know this valve will need fixed at some stage another part of me just wants to get on and get it done while I appear healthy enough at the age of 55. Feels a bit like I’m just gonna have this hanging over me in the future and won’t be able to focus properly on the rest of my life..
I had my first AVR at 52 and I was still not really having any serious symptoms, this was 18 months after being put on watch and wait. My cardiologist wanted to do the op whilst I was still relatively healthy as he reckoned I would recover quicker, rather than waiting until it got a lot worse or it became an emergency op. Hopefully they’ll do the same with yours. Keep us posted.
Wendy
Thanks Fredders. I take it when you say first AVR that you have had another since? Was it a repair or replacement do you mind me asking?
I had to have a replacement. Unfortunately the tissue valve started leaking a couple of years after my op. For the second one I had a mechanical valve fitted as I didn’t want the prospect of possibly having to have another op, as I had to have my spleen removed when it decided to start killing my red blood cells, which means I have a compromised immune system and therefore at greater risk if I get an infection - great fun at the moment!
Wendy
Glad to hear it all went well take care char
I was given ice lollies 'at will' (meaning a near endless supply, all I had to do was ask) and soft ice cream, soothed like nothing else does. Not sure if they still do that ice lollies thing but you know the old saying: don't ask - don't get.
Half-joking but it's worth asking if you can have ice lollies, and especially ask if it's ok to have them 'at will' when you go home.