Heart failure?

I thought the standard procedure for diagnosing heart failure was the BNP blood test.

My understanding after reading the NICE guidelines, is that you can have heart failure with a perfectly ok ejection fraction. If that is the case then surely the BNP test is a crucial part of the jigsaw.

Why is heart stuff in the UK just left, ignored, not taken seriously?

I have been abandoned by my electrophysiologist, he clearly wanted rid and now waiting for a new appointment with new cardio. Great having an av node ablation with permanent pacing and then left to rot.

Have been told after ct scan for kidney stones that my enlarged heart and extensive ground glass opacity on lungs is suggestive of heart failre - can't do a thing, no strength at all, no cardiologist...am on digoxin and have just paid for private bnp test. We are treated badly in the UK!!!

[vinixxx]

I support your idea to test privately BNP/NT-PRO BNP levels.

[gilreid1]

Do you have a question or query. Or just having a rant which we all do from time to time. But try to keep calm

[Hidden in reply to gilreid1]

Not ranting, stating facts. If others identify with similar, i.e. intact ejection rate and heart failure then I am sure they would mention it.

Really do not need to be told to 'keep calm', did not join to be patronised!

[gilreid1]

Excuse me I am not patronising. The facts you are stating are your individual experience. Everyone has had different experience as for myself I have had no issues with aftercare.

Keep calm and safe is a common end to many posts. You sound extremely angry

[Hidden in reply to gilreid1]

You are making assumptions - please stop. Posted to see what others with intact ejection rate say. I have every reason to say what I did and have read plenty of posts on here where people have not had the best treatment. I will now leave this forum. Not worth posting here with people like you.

[Thanksnhs]

I think an echo scan confirmed my diagnosis of cardiomyopathy and heart failure, my EF was only 23, I did have bnp, troponin all done but I had collapsed and was in A&E, kept in for two weeks and all tests were completed, I needed a transplant, I am in Scotland and the care I received was nothing short of wonderful, I am sorry you haven't received the same although I have been treated terribly by my gp, char

[Routemaster]

I have heart failure and I too could not have had better treatment and care from either the hospital or the GP.

[Prada47]

Difficult as someone along the line has been concerned enough to prescribe Digoxin who was that and for what reason ??

Heart failure does fall into the two categories of with and without preserved ejection fraction.

I think but not 100% it is to do with how the Ventricles are working it would be worth a call to a BHF Cardiac Nurse to be actually told what it means rather than me going into what was explained by my Heart Failure Nurse, just in case I wasn't listening 100% !!! Their number is 0300 330 3311.

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