GP : Hi all as you know I am at home... - British Heart Fou...

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Thanksnhs profile image
30 Replies

Hi all as you know I am at home recovering from my transplant, which is going well at the moment, I had been trying to get my prescription sorted out at my gp as we all know how important the immunosuppressant drugs are, well I have just found out my gp has basically dumped me, they told my hospital they will not prescribe my lifesaving meds because they won't monitor them, even though the hospital assured them they would, so now after 54 years I have to find a sympathetic surgery that is willing to take me on, I imagine cost has a lot to do with it as well, I am so angry this is stress I can do without, has this happened to anyone else, or was I just unlucky char x

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Thanksnhs
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30 Replies

Omg that’s absolutely awful. My GP’s the same, it’s like getting blood out of a stone getting them to prescribe anything on repeat.

Thanksnhs profile image
Thanksnhs in reply to

I am so angry about it, and stressed having to phone round to see who will take me on, we only have another four practices in the town char

080311 profile image
080311

Oh my goodness that’s appalling, you couldn’t make it up. I realise your up here in Scotland, as you were in the Jubilee. There as got to be some recourse, you most certainly don’t need this stress, what’s your medical team saying?

Pauline

Thanksnhs profile image
Thanksnhs in reply to080311

To be honest I think they are a bit disgusted about the whole thing, but it has happened before she said,and there is nothing they can do if the gp refuses, apart from changing practice, I am enraged about the whole thing and stressed at trying to find somewhere that will take me char

080311 profile image
080311 in reply toThanksnhs

I wonder if it’s something Nicola Sturgeon should be made aware of? How can you have a heart transplant then be unable to obtain the drugs you need to keep that new heart healthy, it just doesn’t make any sense to me. As you say the monitoring will be done by the Jubilee,

Milkfairy profile image
MilkfairyHeart Star

I am shocked beyond words.

What an awful situation to be in.

Can you get in contact with your MP and MSP?

The way NHS services are organised in Scotland are I gather different to the rest of the UK.

Thanksnhs profile image
Thanksnhs in reply toMilkfairy

Hi yeh I think we are, no one pays for prescriptions, that's if they will prescribe them!, at the moment I don't really feel up to dealing with anything like that, I will just leave it for now until I feel a bit stronger, char

Sunnie2day profile image
Sunnie2day

Meanwhile, is there any way the Jubilee can keep you in medications until you find a new surgery? Can they suggest a local to you cardiologist?

I'm beyond shocked your GP has taken this decision, it seems to me they have a duty of care. I would report them:

themdu.com/guidance-and-adv...

Thanksnhs profile image
Thanksnhs in reply toSunnie2day

Hi I have the transplant clinic on Tuesday they will give me a prescription for all my meds until things get sorted out, which will hopefully be soon, char

080311 profile image
080311 in reply toThanksnhs

What about a email to Jeane Freeman? She’s the minister of health, and the buck stops with her.

Thanksnhs profile image
Thanksnhs in reply to080311

I might look into that once I have got everything sorted char

080311 profile image
080311 in reply toThanksnhs

Can understand you need to get things sorted out for the future but I would just put it on the back burner for now. Let us know how you go, I will be thinking of you.

Pauline

bee2 profile image
bee2 in reply to080311

Personally and when you feel up to it I would get in touch will MP's but also the media. Things are changing fast and our health alas is no longer important to politicians. I'm in Scotland too and appalled at what I see and hear. Hope you get things sorted soon.

080311 profile image
080311 in reply tobee2

Hi bee2 think you meant your post for Thanksnhs not me.

bee2 profile image
bee2 in reply to080311

Oops sorry 😉

080311 profile image
080311 in reply tobee2

No problem,

Pauline

woodlandwonders profile image
woodlandwonders

Shocking beyond words. You are so vulnerable at the moment. All I can do is repeatedly shake my head, which is no use you you at all!

Look after yourself x

Thanksnhs profile image
Thanksnhs in reply towoodlandwonders

Thank you

Ads568 profile image
Ads568

Hi Thanksnhs,

I’m absolutely horrified by your situation. I really feel for you. I get my immunosuppressant drugs direct from my transplant centre via Alcura (home delivery service) and all other drugs are dictated by my transplant team but prescribed (on repeat, etc) by my GP.

Hopefully you’ll be able to talk to someone on your transplant care team about this on Tuesday & ask for their help or at least advice? Do you have anything like Healthwatch in Scotland?

Once you’ve found an alternative GP, and once you’re feeling up to it, it would be good to expose the uncaring treatment you’ve received from this practice! Perhaps the local press might be interested?

So sorry you’re having to go through this.

Take care

Thanksnhs profile image
Thanksnhs in reply toAds568

Thank you, I have got one now, I don't really feel its the best of times to be changing doctors but obviously no choice, I think the way you get your meds is the same way I should be getting mine, hopefully it will all be organised soon char

IrisCarter profile image
IrisCarter

I would make a complaint. To dump you at this point is appalling. Here is a link if you decide to complain.

nhsscotlandprocurement.scot...

Thanksnhs profile image
Thanksnhs in reply toIrisCarter

Thanks, I will look into it in the future, I don't quite feel up to it at the moment, mabe once everything is sorted out I will go into it char

IrisCarter profile image
IrisCarter in reply toThanksnhs

I understand that. I’m supposed to be applying for ill health retirement but everytime I look at the forms I feel exhausted and defeated.

I hope that you start to feel better soon.

Mikedabike profile image
Mikedabike

Surely this cannot be right in a so called civilised society. I would be tempted to go straight to the National press myself. This is scandalous. I hope somehow things work out for you.

Thanksnhs profile image
Thanksnhs in reply toMikedabike

I am still upset about the whole thing, even if the doctor had taken time to give me a courtesy call to explain that they would not prescribe would have helped a bit, but to leave me keep phoning trying to sort things out was awful, my transplant nurse said it has happened before, some GP's just won't do it and there is nothing they can do about it, I am well rid of them with an attitude like that char

EmmyLaury12 profile image
EmmyLaury12 in reply toThanksnhs

Just can’t believe it !!!

Lost for words to leave you without lifesaving meds and not caring its not real . When your feeling stronger please report them as they should be struck off !!!as they are not giving the care to patients that they have a duty to !!!

So sorry but feel so cross ,

Please take care xx

Pollypuss profile image
Pollypuss

This sound shocking . I wonder what Prof Christian Barnard , who pioneered heart transplants would think of your situation

dunestar profile image
dunestar

As others have said this is a shocking situation. I can understand you not wanting the stress at the moment to make a complaint. I hope you can sort out an alternative GP quickly. I hope when you are stronger that you will pursue the matter. It surely cannot be right in this day and age. You will have lots of support from this forum.

Prada47 profile image
Prada47

Time to kick arse, look forward to hearing it on First Ministers Questions !! Don't let them get away with it They are Public Servants Paid by us All

Contact - Richard Leonard

richardleonard.scot/contact

Contact. The Scottish Parliament. Edinburgh EH99 1SP. Telephone: 0131 348 6465. richard.leonard.msp@parliament.scot. Coatbridge Business Centre. 204 Main Street. Coatbridge. ML5 3RB Telephone: 01236 423555.

Contact Details - MSPs : Scottish Parliament

parliament.scot/msps/curren...

Ruth Davidson; Personal Information; Contact Details; Register of Interests; Search; Contact Details. M2.04 The Scottish Parliament Edinburgh EH99 1SP Telephone: 0131 348 6370. Email Ruth Davidson's Parliament Office. BSL calls welcome through: contactSCOTLAND-BSL. Please note fields marked with '*' are mandatory ; Name: * Address: * Postcode: * Email address: * Telephone number: Message .

Hands Face Space to Stay safe

Thanksnhs profile image
Thanksnhs in reply toPrada47

Thank you I will take note of all the numbers, at the moment I don't feel strong enough yet to do anything at the moment, once I get everything sorted out and speak to the hospital about it, I will look into it again, char

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