MICROVASCULAR ANGINA

[Yellow-Button]

I have been diagnosed with likely Microvascular angina 8 months ago and am struggling with the effects of the condition. There seems to be a lack of information from Drs and wonder if someone can give me information. thanks

[vinixxx]

As far as I know MVA is not researched enough and it is a bit difficult to be confirmed in everyone with angina pectoris with "normal coronary arteries".

How did they manage to discover this condition and what are your symptoms?

[Yellow-Button in reply to vinixxx]

thank you for your comments. I also have a problem with the large artery but it does not appear to be flow limiting. I had angio at local hospital and was put on a list for few stents. When I went for further angio and ,I presumed stents, I was told they were not needed but they did further tests and diagnosed likely Microvascular. This was 8 months ago and I have struggled since then with lightheadedness and chest pain regularly. Different meds. have been tried and some have caused allergies and some have made me feel more unwell. I have found it difficult to get someone to deal with my condition who has any real knowledge of the condition. I was previously on no medication and only went to the Dr. as I was having trouble on inclines. Sorry for long reply.

[Smileyian in reply to Yellow-Button]

Milkfairy is definitely one of your GO TO patients on here as she is a bit akin to an on line doctor when it comes to this condition.

[Milkfairy Heart Star]

Hi asdfghjkl23

Welcome to the forum

I have lived with coronary vasospastic angina for 8 years

I have microvascular angina and coronary artery spasms.

There has been an increasing amount of research into microvascular dysfunction and vasospastic angina in the last few years. Also referred to as Ischaemia non obstructive coronary arteries (INOCA)

The BHF have funded some of this research.

My vasospastic angina was diagnosed during a specialised angiogram.

The BHF has this information about Microvascular angina and it's possible causes microvascular dysfunction and microvascular vasospasms.

bhf.org.uk/informationsuppo...

bhf.org.uk/informationsuppo...

There are quite a few of us on the forum with microvascular and or vasospastic angina.

I am sure they will be along to share their experiences too with you.

[Yellow-Button in reply to Milkfairy]

thank you for your information.

[Hidden]

Hi,

I have MVA (diagnosed around 3 years ago). It is a difficult condition to manage and find information about... it took me a couple of years to find this forum which has helped a lot as it is good to talk to people with the same condition...it was quite a lonely time before I found this!

Hopefully you have a cardiologist who understands the condition, if not it’s best to get referred to one who does...there are various medications and treatments but different things work for different people so it’s a case of trying different things. You will have good and bad days. Hot water bottles or similar on the chest help with the pain! And wrap up warm in winter (gloves and scarf in particular)!

[Yellow-Button in reply to Hidden]

Thank you, yes I agree I need to be referred to someone with experience of this condition and will endeavour to find someone in south of Scotland.

[Hidden in reply to Yellow-Button]

I’m under Professor Collins at the Royal Brompton.

Good luck, let us know how you get on!

[Yellow-Button in reply to Hidden]

thanks, will do. I downloaded the INOCA meeting of minds 2019 and was very interesting to hear of the work at RoyalBrompton.

[Milkfairy Heart Star in reply to Yellow-Button]

I see a Cardiology Specialist at St Thomas's hospital London where the latest research is being carried out.

There is a trial into a possible new treatment for MVA being carried out. The PRIZE trial the Royal Brompton is not taking part in this trial.

clinicaltrials.gov/ct2/show...

[Milkfairy Heart Star]

Glasgow and Newcastle are centres where they have Cardiologists familiar with Microvascular dysfunction and vasospastic angina.

[Yellow-Button in reply to Milkfairy]

thank you, I will try to find out more.