From heart failure to preserved eject... - British Heart Fou...

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From heart failure to preserved ejection fraction

AtharMunir profile image
9 Replies

I am on Entresto for my heart failure for less than a year. I had reduced ejection fraction 35%.

Last month echocardiogram showed preserved ejection fraction of 50%.

Entresto has been a miracle drug for me.

However, I have now developed arrhythmia, still investigating. I reckon this is because of anxiety due to COVID situation. I have advised to increase dose of selective Beta blocker from 2.5mg to 5mg.

Has any one else had experience of recovering from heart failure condition?

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AtharMunir profile image
AtharMunir
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9 Replies
Leighssister profile image
Leighssister

That’s amazing, I am so pleased for you and fills me with hope. I have just switched to Entresto this weekend and have an EF of 31%. I did quite a bit of research on the drug leading up to starting and for the people who tolerate it there can be a marked improvement in EF.

I hope it continues for you and you start to get your life back.

Good Luck

GracieOS profile image
GracieOS

Hi I'm not on Entresto, my heart failure diagnosed about 20 months ago came a little before Entresto was being prescribed here regularly. Living in rural West Wales I think things tend to be a little behind the times. That said I have experienced a good recovery from heart failure on a combination of Candestartan, bisoprolol and Eplerenone, with a few, fairly minor, life style changes. My EF on diagnosis was low to mid 30s, a year later it was back up to around 50, just below the normal range. As a result I no longer qualify for Entresto.

I do have arrhythmia issues still and slowly trying to increase bisoprolol to deal with this. I do suffer from tiredness still, and I understand that the bisoprolol doesn't help this, but basically things are going OK.

Recovery from heart failure and good management of the condition is possible and hopefully our stories give hope to those newly diagnosed.

in reply to GracieOS

That's great news and gives me a lot of hope. Thank you for posting. My HF was diagnosed last August with an EF of 35%. I'm also on Bisoprolol, Candesartan and Eplerenone. Apart from the tiredness I'm absolutely fine, so am hoping by the time I next have an echocardiogram my EF will have risen too. I was told if it hadn't I would need to have an ICD fitted, so 🙏🤞

GracieOS profile image
GracieOS in reply to

Likewise, I was told the next stage could be an ICD. Good luck. Life style changes for me where some minor adjustments to diet, I already had a reasonable diet, cut right back on caffeine, I only have one cup of tea first thing in the morning, thereafter it's all decaf. Reduced alcohol intake, just a couple of glasses of wine at the weekends. Regular moderate exercise, ie a walk of at least 30 minutes at least 5 times a week, tbh I was already doing this as I have dogs.

in reply to GracieOS

I was quite fit as pre Covid we were linedancing 3-4 times a week plus regular walking. Now, we're still walking but really missing the dancing. I'm finding it harder in lockdown to become motivated and have been eating too much! I need to take myself in hand again! Thank you for sharing your progress.

GracieOS profile image
GracieOS in reply to

I too was fit before, regularly walked 10km plus. I'm still walking and have a personal target of 100km per month, which I manage with ease most months. I do yoga as well, before and after. Being fit helps I think. How old are you? I was 55 when diagnosed. Yeah, lockdown is a definite issue 🙂

in reply to GracieOS

You're doing well, my step count is definitely down, we do miss the dancing. I used to do yoga too but starting to feel quite sluggish with the inactivity since lockdown. You're lucky having dogs to make you go out, what breed are they? We always had labradors but didn't want to be tied as we got older (70 in July!) so will look after our son's dog when he goes out to work after lockdown! Take care.

Qualipop profile image
Qualipop

NO experience but boy that's good news. Congratulations

Only46 profile image
Only46

This really gives me hope x so pleased for you. I was diagnosed with HF in July, genetic. Ef was 35-40, %, I'm on ramipril and BB and currently increasing doses slowly. Hoping and praying my EF will have improved when I next have an echo x

Much love to you x

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