I’m 40yrs old and got diagnosed with myocarditis last march 2019. And from there it has been downhill for me. I’ve never felt normal since then. I have constant dizziness.Palpitations in my hands and legs. My legs have become quite weak and loss of balance.
It started with dizziness and numbness as I could not feel my legs. Then came the head rushes which resulted in my heart pounding for an hour or so (HR was more than 150 while lying down). It always starts with a head rush and dizziness then my heart starts to pound and would like to know if anyone has experienced this.
My symptoms include dizziness, shortness of breath, chest pain and fatigue. Other symptoms include dry and pain in my throat, constant flu like symptoms and so fourth. Am very delicate to noise and lights since they make me fatigued as soon as possible. When things are moving around me then stop, my dizziness also increases dramatically. Also when I am in zoom meetings concentrating, I just suddenly feel deep fatigue in my head then strong dizziness and cannot follow up.
My tni has been way elevated for more than a year. Tnt is normal which is a bit confusing. ECG has been all the same with negative t-waves (normal people don't have negative t.waves) and has not changed.
My heart pounds a lot. I can feel it in my neck and head. Am on Bisoprolol.
Sometimes I feel pain in my heart when I breathe heavily and have to change positions.
I have been having constant dizziness and head rushes 24/7 and sometimes feel like I'm losing my mind. Sleep is my biggest asset now. Less than 7 hrs of sleep, i cannot function during the day.
The doctors now tell me that my myocarditis has healed but the symptoms have doubled. In the Autumn, I'm ready to quit my job and stay home since I am always on bed rest all day.
Before all this, I was very healthy and went to the guy 5-6 times a week. We tested for lyme disease but it was negative.