PAD Pain: I know a number here suffer... - British Heart Fou...

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PAD Pain

MichaelJH profile image
MichaelJHHeart Star
44 Replies

I know a number here suffer from PAD (peripheral arterial disease) that usually affects the legs and occasionally the arms.

The usual symptom of PAD is cramp in the calf area when walking although it can occur anywhere from groin to the end of the toes. Occasionally it occurs when resting/sleeping.

Before the angina limited my walking it was a freqent occurrence. Since my bypass it has thankfully been rare and usually when I have walked further than usual for me. I have only had one or two night cramps since. However, a few hours after going to bed last night I woke in absolute agony with cramp it my left foot and toes. I could not stand for fear of falling and it took a good fifteen minutes to subside.

I was wondering how others were affected by PAD as it often seems to come hand in hand with CVD?

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MichaelJH profile image
MichaelJH
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44 Replies
Adaboo profile image
Adaboo

Might be an idea to have a duplex scan of your legs to check on blockages. Or have an ABPI test if you haven’t had a recent one.

The only way to help PAD is to keep walking at pace through any pain as much as possible to build collateral vessels. ( which I know must be difficult with angina) bike riding or swimming can help too.

Cramps can also be electrolytes imbalance or lack of magnesium.

I fear loads of folk with heart problems don’t realise they also have PAD.

Milkfairy profile image
MilkfairyHeart Star in reply toAdaboo

Hi Adaboo,

Some really useful information.

Are you someone who has a lived experience of PAD?

Adaboo profile image
Adaboo in reply toMilkfairy

I have a whole family experience of it including amputation and bypasses. ( heart and legs)

For my sins I’m also now on the board of a patient advisory service along with several surgeons from around the world which is saving people from amputation just because their surgeon can only use certain tools or certain techniques. It’s all fascinating stuff!

Milkfairy profile image
MilkfairyHeart Star in reply toAdaboo

Yes a very interesting and neglected area of cardiovascular disease.

What does your role on the Patient advisory service involve?

in reply toAdaboo

I went to the doctor office complaining of feet, legs and hands pain. They get cold and numb and hurt. I have been getting real pale as well. he did a brancial ankle test and it didn’t go past 1.. hmm 🤔 PAD but he dismissed it. Saying cause I am petite .. They keep getting worse. Like times hurt so bad and twitch. I asked can I have a vascular doctor referral to see if their is a blockage or what can be done. he refuses to get me one. Saying who told you need a vascular doctor?? I can get a ekg on you in my office what’s that going to help? . I have sinus tacarydia which is leaning towards IST. Low BP and my weight is BMI 18.5 4ft11 42 yr female . Can he deny me a referral ? What can I do help minimize this.. I feel that my blood is not reaching where it needs to. Dizziness etc. Thank you in advance

Adaboo profile image
Adaboo in reply to

If your ABPI test came back at around 1.0 then your blood flow seems ok. If it’s under .90 it indicates a slower flow.

in reply toAdaboo

It didn’t reach 1 and machine chimed and said urgent.. Thank you for your time

Adaboo profile image
Adaboo in reply to

Can you ask your GP for the actual test results, what kind of machine did they use as I’ve only had them done with blood pressure cuffs?

The best thing for PAD is walk walk walk to build collateral vessels, but you need more investigation at this point. You have a right on the NHS for a second opinion.

MichaelJH profile image
MichaelJHHeart Star in reply toAdaboo

I have had a number of duplex scans and even more ABPI tests done over the past decade. In addition I had balloon angioplasty to the left leg some years ago. A planned bypass behind the knee was cancelled when the Head of Vascular Surgery changed to someone who only intervenes when there are other problems like ulcers or gangrene. I imagine he doesn't service his car but has it repaired when it breaks down as he is not from the school of "prevention is better than cure"!

Adaboo profile image
Adaboo in reply toMichaelJH

Do you feel you should of had the bypass?

MichaelJH profile image
MichaelJHHeart Star in reply toAdaboo

Yes, very much so as my walking is now limited by arthritis, and not angina and breathlessness. In fact I had ceased having cramps when walking for about 18 months before surgery I was that limited by angina. My LAD was 85% blocked and three other coronary arteries over 70% blocked. I feel the fact that the heart can pump blood around properly reduces the effects of the PAD. Why do you ask?

Adaboo profile image
Adaboo in reply toMichaelJH

I didn’t know if I totally understood what you were saying in your previous comment. You’d be within your rights to have a second opinion if it’s limiting your lifestyle.

MichaelJH profile image
MichaelJHHeart Star in reply toAdaboo

I am sorry we have crossed wires. My reason for originally joining this forum was I had severe angina and was awaiting a heart bypass which I have now had. You of course were referring to the one behind the knee. As there is a restriction I would have liked it to have been done. However, not restricting me at the moment. Treatment of PAD in UK worst in Western Europe sadly!

in reply toMichaelJH

They might think it's a bit cheaper to...remove the offending leg off down the line? Logic, "we haven't got enough money here, he could go to A& E if necessary" . Who knows?

I have had the cramp once. It does hurt.

You or I may well have reached a stage where change in a lifestyle might save the leg. 💪

Milkfairy profile image
MilkfairyHeart Star

Do you have a website link so that others on the forum with PAD could have a look ?

It is always helpful to be able access as much evidence based information as possible when making decisions about treatment options.

Adaboo profile image
Adaboo in reply toMilkfairy

Totally agree with you. It’s actually more CD based than just PAD .

But my actual identity is on there and after all the hounding I and others have had from other members on this forum just for having a different opinion . . I’d rather not. I can do without it following me on there.

I’m sure you understand.

Lezzers profile image
Lezzers

Thanks Michael. Although I'd heard mention of Pad on this forum before I had no idea what it was. How would you know its PAD & not just a bout of cramp?

Anginamum profile image
Anginamum in reply toLezzers

That's what I would like to know Lezzers, every little scheme and cramp makes you think of it x

Adaboo profile image
Adaboo in reply toAnginamum

PAD normally makes itself known when you walk at a reasonable pace for a while, could happen quite quickly or after a half mile or so. You can feel one leg or both feel heavy, or aching, or even think it’s hip pain. Most also get cramp type feelings in the calf area. If you stop waking the pain will stop, but it will start again after you start walking again.

You may also notice your legs or toes are colder than normal, different sensations in your legs or feet or toes. Discolouration of the skin.

If anyone gets cramps or pain at rest it can mean PAD has progressed and you should get assessed quite quickly.

Hope that helps. 🙂

Lezzers profile image
Lezzers in reply toAnginamum

For years I've had pains in my toes when I've been walking. Not all the time & not aways, but very painful when it does happens which is less often as I've grown older though I'm as active as I've always been. I've also had cramp in my calf before now but I could probably count on 2 hands how many times I've had it over my lifespan!! So how would I know if its PAD or cramp? Would've been interested in adaboo's website but perhaps someone can point us in the direction of a reputable website to look into it further?

Adaboo profile image
Adaboo in reply toLezzers

Just google it, there are loads of information sites about.

It’s not my website, I’m just a small part of it, but I’m sure it can do without the bickering , arguing and sniping that seems to happen on here unfortunately.

If you’re at all worried then just ask your GP 🙂

Lezzers profile image
Lezzers in reply toAdaboo

Sorry, confused?? Are you accusing me of bickering, arguing & sniping? I'm interested in PAD as my previous comments show not sure why you're accusing me, if I'm fact you are??

Adaboo profile image
Adaboo in reply toLezzers

Lezzers this is my point exactly. There are no comments like this on our site, no one would even dream that anyone was being anything but kind 🙂

Lezzers profile image
Lezzers in reply toAdaboo

You made the comments to me??? . I have no idea why you would feel the need to start this purely because I asked about PAD?? However, your comments have been reported, so I'll not reply again.

Sunnie2day profile image
Sunnie2day in reply toLezzers

I don't think you were being targeted in that reply - I think Adaboo meant some of the flak other commenters have lobbed at several other commenters and then carried those nasty-grams through several different discussions aimed at the same persons from discussion to discussion.

Not going to name names, here, but they've targeted you several times and I think Adaboo has been targeted as well by the same louts (if I might be permitted to call the ill-mannered fractious argumentative types by the quicker-to-type term 'lout(s)')

I've seen these louts try it on with Milkfairy - but she takes no prisoners and they usually back off quickly.

Posting on message board forums isn't always easy and sadly there are usually a few commenters who try the patience and goodwill of members.

Lezzers profile image
Lezzers in reply toSunnie2day

Thank you Sunnie2day. Unfortunately the comments were made to me & the reply didn't exonerate me so I've reported them.

Adaboo profile image
Adaboo in reply toSunnie2day

Thank you Sunnie2 day. I have indeed been hounded on here by some, even followed onto other healthunlocked forums! I was not targeting Lezzers at all, but this always seems to happen, and it happens because this site does have some people on it who are spiteful to say the least so people are always on the defensive when nothing has been aimed at them.

All I did was answer Michael to help, seems I can’t win 🤷‍♀️🤷‍♀️

Sunnie2day profile image
Sunnie2day in reply toAdaboo

I think we agree - Lezzers is not the kind of commenter you were talking about but there are those who are and boy howdy do they push it. I try to ignore those unpleasant types and again, I'm glad we agree Lezzers is not one of the unpleasant types:)

Adaboo profile image
Adaboo in reply toSunnie2day

Yes we agree, It Wasn’t aimed at lezzers, I thought that was clear in my reply, but I’m sure it’s clear now at least.

It’s a shame we have all become suspicious on here because ( as you say) of the ones who do push it.

Have a lovely Sunday evening. ☺️

Lezzers profile image
Lezzers

Thank you, very helpful. I'll have a look.

Lezzers profile image
Lezzers in reply toLezzers

First link I'm getting error message Page Not Found 404. Will have a look at the 2nd link.

Speakeazi profile image
Speakeazi

Hi Michael

Must be something in the air. I was on the indoor bike on Friday afternoon and that night I had horrible cramp in the lower part of my shin/ankle and under the arch of my other foot.

I managed to jump out of bed, get downstairs, have some paracetamol, drink some water and get a hot water bottle which I rested my feet on. I find I have to be very gentle in all my foot and toe movements. In the end I did drop off. I think I need to keep the feet warm...

Anyway I will speak to the Vascular consultant tomorrow at my annual appt.....

Snowdrops_17 profile image
Snowdrops_17 in reply toSpeakeazi

You just reminded me of my hot water bottle, as my feet tend to get cold, was diagnosed with PAD, in May. Tonight I shall snuggle up with mine!!! Thanks for reminding me 😁👍

MichaelJH profile image
MichaelJHHeart Star in reply toSnowdrops_17

PAD can cause nerve damage because of the reduced circulation so extreme care should be taken as burning could occur without the person realising! If this happens healing is comprised because of the circulation problems.

Snowdrops_17 profile image
Snowdrops_17 in reply toMichaelJH

Thank you Michael, but it is not that bad with me. I am pretty active when I am at work and try to variate my tasks. But I still get quite tired and legs ache after a very long day.

Had a lazy day today but need to exercise again tomorrow to aid good blood circulation for heart and legs. You take care tonight Michael 😊

Speakeazi profile image
Speakeazi

Had a reread of your post. I have occlusion in my LAD and other significant arteries.

Other things apart from cramp:

Pain on the top of my foot

Numbness to the right on my right foot- possibly related to a back op L5/S1 where sciatic nerve was damaged

Longer to recover from colds etc

Chest pain sometimes

Find walking harder in the hot/cold

Other social history incl blood tests, annual Doppler tests, change of lifestyle food etc.

Sunnie2day profile image
Sunnie2day

Please (read that underscored!) forgive me for innocent ignorance but does lying flat and 'pulling' (via muscles, not reaching down and grabbing) the foot on the cramping leg up towards your head (keeping the foot and leg flat) help at all? I don't know if PAD leg cramps can be relieved that way so again, forgive my innocent ignorance if it doesn't.

I get these leg cramps frequently (no PAD and yes I've been examined for it). A cross-country runner friend of mine taught me the foot-pull (also known as the inverted foot stretch) and it works for me instantly if I do it within a few seconds of the cramp starting.

If I wait until it becomes a 'full-blown' leg cramp (most often in my calf), I find wrapping a thick sock under my toes and using the ends of the sock to get a good grip, pull towards my head. Keeping my leg and foot flat, and again, it works nicely and reasonably quickly to relieve the agony.

Lezzers profile image
Lezzers

Thank you, I have read your links, very interesting. I'm bowing out of this thread now, I really do appreciate your advice though.

Speakeazi profile image
Speakeazi

That’s so useful. Unfortunately The leg pull doesn’t work for me!

I think I’ll start a Cramp chat to see what works for others!

Pinnochio profile image
Pinnochio

Hi just wondered if you have increased your statins?

MichaelJH profile image
MichaelJHHeart Star in reply toPinnochio

Been on statins for around 9 years, most of that time Atorvastatin. Current dose 40mg since my bypass in June 2018. So not relevant.

I had muscle pains with Simvastatin but that are very different to cramp!

Hayley765 profile image
Hayley765

I have PAD blockage in common iliac artery, my claudication pain is in the buttock muscle not calf. You will get muscle pain when you walk a certain distance,,, if you rest pain will vanish, it will happen again when you walk the same distance. Walk as much as possible through the pain and you will build collaterals to compensate blocked artery. I have had it for 10 years. Some days are worse than others now hills and stairs are a bug bear they hurt like hell. Stents behind knee are not used they would bend and block the artery

MichaelJH profile image
MichaelJHHeart Star in reply toHayley765

My previous vascular surgeon was planning a bypass behind the knee but when they restructured (he left for a better position) his replacement has a treat in emergency only mentality!

Speakeazi profile image
Speakeazi

Hmmmm

Exactly what is the treatment you speak so highly of.

Incidentally GDPR rules prohibit fees for transfer of records.

So not sure entirely what it is you feel has helped you so much that you have built a website......

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