Hi just wondering if anyone knows someone like myself, who is living with Chronic Aortic Dissection type A ascending. If so, how long have they had it and how are they managing?
I had mine in March 2018, but was not diagnosed until late July 2018 when I had an outpatient echocardiogram . I am due to go for six monthly checks, echocardiogram, ct with dye etc. Does anyone know the longest time someone has lived with this condition?
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Milexi
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Milexi, sorry to hear this and sorry for the delay in seeing your post. That's a pretty unusual case, Type A is usually seen as an urgent surgical case. You could try the Facebook Aortic Dissection UK Buddies group, but I don't recall many at all being medically managed for type A.
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Ascending Aortic Aneurysm
Aortic regurgitation
Leaking Bicuspid aortic valve
dilated aortic sinus of Valsalva
Bicuspid aortic valve and enlarged ascending aorta. 
