Aortic Dissection type A Ascending.........Chronic

[Milexi]

Hi just wondering if anyone knows someone like myself, who is living with Chronic Aortic Dissection type A ascending. If so, how long have they had it and how are they managing?

I had mine in March 2018, but was not diagnosed until late July 2018 when I had an outpatient echocardiogram . I am due to go for six monthly checks, echocardiogram, ct with dye etc. Does anyone know the longest time someone has lived with this condition?

[Cliff_G]

Milexi, sorry to hear this and sorry for the delay in seeing your post. That's a pretty unusual case, Type A is usually seen as an urgent surgical case. You could try the Facebook Aortic Dissection UK Buddies group, but I don't recall many at all being medically managed for type A.