I am so pleased, I found this website and be able to share my story with those out there who are having similar problems. I am from Spain although I have happily lived in this country most of my life. However, I don't have around me the family network support I would have otherwise and would love to hear from you in the hope to feel a bit more reassured and lest lonely about this matter which I am finding quite daunting!!"
I have been diagnosed with a bicuspid aortic valve by pure chance at the age of 32 having had two healthy children. I was told I had been born with a bicuspid valve which shocked me to the bone for I had no idea there was anything wrong with me up to that point. I am now 52 and had no major issues so far regarding my valve so far. I cycle regularly, I go to the gym and I feel generally well. However, after last year check up I was told I now have an enlarged ascending aorta of 4.3 which is being currently monitored. Having spoken to lot's of people over the years about valve replacements I was feeling quite positive and resigned myself to the idea of having to have a replacement at some point. However, having my ascending aorta damaged as well is a different matter all together as I haven't met or spoken to anyone suffering this type of ailment. I am particularly interested in hearing your views about this type of surgery and would love to hear from anyone who has been through it. I am having an MRI at the Royal Brompton Hospital in two weeks time and are preparing myself for the possible prospect of having to go through this type of surgery.
Looking forward to hearing from you!!...