PAD. Am i the only person with this ... - British Heart Fou...

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PAD. Am i the only person with this condition? ?

Ceed profile image
Ceed
11 Replies

Morning all. I can find virtually zilch on the condition 'PAD' and would be thrilled to liaise with other sufferers.

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Ceed profile image
Ceed
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11 Replies
Ktomoph_ profile image
Ktomoph_

Hi Ceed....sorry to hear your sufferings. If you type PAD into the search box at the top right hand corner of this page and press enter it will bring up other forum members posts and the replies which are both interesting and informative. You could contact them by reply to discuss further.

Good luck

Ceed profile image
Ceed in reply toKtomoph_

Hi K&T

Thanks for that info. Actually I did try that but found very little. I'm probably not using the site correctry - I'm a total technophobe.

My main reason for "coming back" is to ask if anyone has used either a "Biogeneriser" or "Reviter" circulation leg revitalisers. Have just "come across" these but before buying one thought somebody "out there" may be able to advise me.

Hoping to hear from you.

Speakeazi profile image
Speakeazi in reply toCeed

Hi

Just looked up the Reviveter.

There is no mention of PAD.

It seems to work by stimulating the nerve endings in your legs.

But it was explained to me that the pain and cramps I have from PAD is from the leg muscles not getting enough blood/ oxygen.

So, if you have pain and you stop walking the muscle stops needing so much oxygen and the pain subsides.

Because the body can be very clever, it can grow collateral blood vessels to help supply the leg muscles with oxygen. Walking and exercising helps to stimulate growth of these little blood vessels.

If you can get out and walk looks like a better way to spend your time and save your money!

Helen_BHF profile image
Helen_BHF

Hi Ceed , the BHF has some info on PAD: bhf.org.uk/publications/hea...

Hope this helps!

skid112 profile image
skid112Heart Star

Hi Ceed, assuming you mean peripheral arterial disease?

there is some information on the BHF website, here bhf.org.uk/heart-matters-ma...

and here

bhf.org.uk/research-project...

hopefully that helps

Mark

Ceed profile image
Ceed in reply toskid112

Good morning Mark

Appreciate your reply but have actally managed to get that far. What I CANNOT find are other SUFFERERS with whom to share.There are dozens with RLS (I also have that) .

Speakeazi profile image
Speakeazi

Hello. I have it too!!!

Speakeazi profile image
Speakeazi

I was diagnosed in August last year. I have one block and several pretty bad patches dotted all over my arteries

I try to eat like a goddess to lose weight no sugar or fat :(

I walk 2 miles each day no matter the weather

45 mins on exercise bike 3 times a week

A longer walk at the weekend

And lots of medication

I have gone down 2 dress sizes

I walked for 2 hours on Saturday looking at the London Lumiere - in August I could not walk 50m without stopping

You have to walk every day, it’s not a cumulative end result, the pain returns if I miss one day

The bike really helps with the walking- I don’t know why but it does.

Let me know your story.

MichaelJH profile image
MichaelJHHeart Star

I have had PAD for about seven years. Four balloon angioplasties in 2013 relieved the symptoms for about 18 months. At the time a further angioplasty and a bypass were on the cards but a restructuring of vascular surgery (with the departure of my consultant) changed things to a 'watch and wait' scenario. GB is far less proactive than the US and western Europe in respect to treating this condition. Currently CVD limits me to the point I can't encounter cramps!

I have been told by two professionals that the type of device mentioned is next to useless and could potentially cause harm where sensation has ben reduced!

Hayley765 profile image
Hayley765

I have PAD i have had it five years but only just been diagnosed my pain is in my buttock area the blockage in the iliac artery on an exercise program twice a week. I am never sure weither to push through the pain or stop until it subsides. Hurts like hell when i walk uphil but i do set the running machine on 7 incline hoping to make new viens bypass my block i have 12 more classes until they reassess at the hospital. I am 7and a half stone never been overweight this runs in my family.I have lost two brothers at 37 years and my little sister

JDSK profile image
JDSK

I've just had bypass surgery in my left leg due to a clot which I believe may have been as a result of PAD although the consultants seem to have differing opinions! I too have struggled to find information/ others who are in this situation. For the time being I'm just doing everything I can to be proactive in terms of my health while I await further tests/ consultations e.g. Healthy diet - high fiber, fish oil supplements etc As much exercise as I can do, plenty of walking, will progress to daily cycling when surgery recovery allows and most importantly have packed in the smoking! Best of luck

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