shadow54

[shadow64]

i am trying to find more upto date info on loyes deitz syndrome,my wifes Aorta burst in 2010 & she was saved by emergency Surgery.since then she has found out that she has the above syndrome & since then has found out that her 2 brothers & 2 of our children also has this.this has resulted in all of them undergoing operations aortic anurisums.they only info on line is from america.does anyone know of any UK sites.

cant ask GP as they even have to look it up every time we see a different doctor

[JakJenLew]

You could contact the BHF Help line 0300 330 3311 they would be able to help