As some of you know I had my PVR in July. Cutting to the chase my discharge instructions said follow up with the congenital cardiac surgeons in 6-8 weeks time-these were wrong my cardiologist already said she wanted the appointment with her not the surgeons but the Advanced Nurse Practitioner Cocked up the discharge instructions. Credit to the hospital they scheduled the appointment according to the discharge instructions for 1pm last Wednesday and I made plans to return to Uni for a group coursework meeting in the evening. (Allowing 3 hrs for the appt).Then 3 weeks later hospital send a second letter for a 3pm Appt same day but this time with the congenital cardiologist. They cancelled the one at 1pm with out ever informing me (I found out by rising the secretary confused, basically the cardiologist wanted me to see them not the surgeon) and no prizes for guessing that I could not attend as I had already booked my train around the first appointment. No apology for the change or for the mistake the hospital made, [For those questioning my group have already been granted 2 extensions on the coursework for my treatment it did now need to be done].
I rescheduled it for 27th September however sadly I was informed today I have a compulsory lecture same day same time as the appointment. I knew I had this session and was really looking forward to it- it only runs once a year and one of the extra circulars I wanted to do depends on me attending it. May I say that moving to Uni permanently tomorrow the trip is 7hrs round to attend. So I rang the hospital again to cancel. They were Fine with cancelling however the lady in the booking centre claimed I had now cancelled it twice (kind of true but they royally fucked up the first time) so now not allowed to reschedule it and would be discharged with out post op follow up. (I know this is not true as I read the trust policy it is more complicated than that). Part me feels guilty for prioritising something else but Uni have moved so much stuff and made a number of allowances around the constant changes in the process already- really did not need to add administrative mess up to it.