NICE says YES

[Amcc]

New foam treatment called ESTILAR. Advised my granddaughter to go to GP and get script, which she did. But not before a bit of an argument because of cost, my granddaughter has had all the creams, potions and ultraviolet with very short term improvement. She is only nineteen and psoriasis has been hard for her to cope with, she refuses to take meds that can affect pregnancy, even though she's not pregnant or contemplating motherhood yet. Her argument is how long do these medications stay in your system and do they know if it could affect fertility in the future. Obviously, the doctor was not happy and virtually wrote her off, NOT GOOD ENOUGH. Anyway she has started the Enstilar and reports improvement after just two weeks. Fingers crossed everybody.

[chloe40]

Hi Amcc and welcome to Beyond Psoriasis and thank you for your post. This is really interesting and once again proves that we often have to push our medical professionals to prescribe, because of the cost.

I hope it continues to prove beneficial to your granddaughter.

Chloe

[Amcc in reply to chloe40]

Thank you Chloe. Luckily I read all the articles about any medical conditions that affect my family and naturally get them to follow it up.........or should I say nag them.

[Jane-wood]

I was on humira for a few years. I wanted to try for a baby and discussed it with my Dr's. They advised me that fertility is helped by this drug and would be out of my system extremely quickly. I didn't even have to take anything to flush them out as I did with other medication I took previously.

[Amcc]

I have great news from my granddaughter, who also recommended Estilar to an acquaintance . Its a miracle results within three days of usage, granddaughter reports that all the scaly bumps have gone leaving behind the (as usual ) white dot pigmentation. Its also really easy to use as its a foam, no gunk or stickiness what so ever. So, lets hope that this miracle foam works for the long term.

[Bee1970]

I don't blame her. I have had PSA since I was 18 and my refusing to take the meds was more of a I'm only 18 what do I do when I'm 60 and no meds are working anymore, anyways I'm now 46 and have done some permanent damage to joints etc. I will say this when I really needed it or had bad flares i would try what was prescribed, I am now on humira, not sure how long I will need to stay in but it does work wonders.

[Amcc in reply to Bee1970]

Bee1970, I am pleased you have found relief with humira. Problem is that my granddaughter was caste as 'non compliant' for turning down meds that were offered, upshot of this is that she is not registered with a consultant or clinic. I attended an appointment with her once and was shocked at the way she was treated. The doctor was very dismissive of her worries and the fact that the topical treatments were just not working for her, saying you must dab cream on each spot. Must say the doctor did change her attitude once she saw the extent of full body outbreak, and said well you would be dabbing all day and night. It breaks my heart to see her skin when in full outbreak and I know it affects her on many levels; confidence, socially and often bad mood swings. I try to advise her, but she is nineteen now, I cant drag her to doctors and ask for referrals for a different consultant/clinic. Because of her experiences she has no confidence and is apprehensive to broach the GP, that's why when she told me she had to fight for the Estiler I was proud of her.

[suds2153]

I also have used Enstilar with great results, less than a week and both feet were clear. So far have only had to resort to using maybe one night a month to keep psoriasis at bay. Wish they had something that worked as quickly for the arthritis.

[Amcc]

Problem is suds2153 N.I.C.E turn down so many medications, that we the public know little to nothing about. Sometimes, by chance, we come across meds that have not been publicised or offered by our own physicians. mainly because of cost, but in my heart its our bottom end medics i.e. GPs that are sometimes lax with new developments whether on purpose or because of cost. In an ideal world ( I wish) GPs would advise their patients of new licenced meds for their needs, after all prescribed meds are reviewed regularly, an opportunity to apprise patient on new available treatments. Alas, its not an ideal world, so many patients are unaware of developing treatments, should word of mouth really be the norm for info.

[Amcc in reply to Amcc]

PS. there may well be a treatment 'out there' for your arthritis, who knows !!

[Hidden]

IVE JUST STARTED USING IT BUT IT RAN OUT VERY QUICKLY ,