losing my mind ???: ive been diagnosed now... - Behçet's UK

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losing my mind ???

sammarriott profile image
7 Replies

ive been diagnosed now 12yrs 7 of them have been in remission until last yr and have been seriously struggling with it. i am wandering if anyone finds that they are having problems with memory. its almost like someone has pressed the delete button on things. im starting to get a lil worried about it

oh and happy new year everyone

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sammarriott profile image
sammarriott
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7 Replies
billi profile image
billi

Hi firstly you don't give your age as it can be that. I honestly had an amazing memory until about 20 years ago when I'd have lapses infrequently but of late it's more often and even worse. Is it part of BD, or the meds, or just our bodies and minds going into the next stage of life?? If you are really worried you should mention it to your GP and take it from there. I did have a brain scan about 5 years ago as both my parents had dementia, but thankfully all was well. I was advised to cut down and back from some of the meds I was on at the time and it seemed to work. Now I'm on more drugs again for another health problem and memory is drifting..lol.

Hope this helps, don't keep this to yourself tell somebody and tell the docs.

Billi

Ps Hoping you have a happy and healthy New Year.

sammarriott profile image
sammarriott in reply tobilli

I have spoken about this numerous times to my specialist but doesn't seem to be interested and I'm 42 so I shouldn't be having problems just yet lol

Maggie2277 profile image
Maggie2277

I pretty much always forget things. I was diagnosed in September with BD .... I'm 38.... It's very scary

kattm profile image
kattm

Hi, I'm 44 and have found that every time I have a bad flare of BD my memory becomes pretty bad. It can be very distressing especially when you can't remember where you parked the car etc. I have found that if I sit quietly for a few minutes and try to calm myself I can usually remember what I was doing or was going to do. I'm never sure if it is the medication or the disease, you can always keep notes, lists, but in saying that sometimes I cant't remember where I have put them (ha, ha)

Dan_NY profile image
Dan_NY

I also have memory issues. Mine cannot be explained by meds, as this condition predates meds by many years. It cannot be explained by age either. Work is a real challenge. Those around me at work can easily see this and give gentle reminders about tasks and such. Some do not have such kind views though.

nurse_ratchet profile image
nurse_ratchet

No worries...my husband told me the other day that I'm "not as sharp as I used to be". I wanted to die. So I'm looking at reading more, etc....scared to end up like people I took care of as a nurse. I've had episodes of total blankness before,ex: being in traffic and not knowing where I was for 2 min. That was by far the worst, but I get the foggies and forgetful yes :(

Let's do puzzles! Take care,

Gen

nurse_ratchet profile image
nurse_ratchet

Oh yes....I'm 42 as well!

Gen

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