feeling so tired

[jayjay1251]

ive being sleeping more and more these 2 days my bowels had locked again , my wifes is telling me she wants to go out but i currently dont have the energy or inclination

[Andy-C]

Ditto, feels like i sleep half my life away recently. I'm 46 which isn't old in my opinion but i can have a good 8-10 hours sleep at night and still need another nap having maybe been up for only 3 or 4 hours. I do have a Vitamin D deficiency which doesn't help but i sympathise with you IT IS SO ANNOYING!. I have heard "SUNSHINE" is supposed to help although i cant say i've felt the benefits.

Andy

[cclive35 in reply to Andy-C]

I must admit I'm kind of glad to hear I'm not the only one, it's so annoying but I often need to sleep even after 8 to 10 hrs at night,I've never really spoken about this attaxia for 20 yrs but its getting me down now

[Fifa Volunteer]

Hello

There is no doubtt that feeling tired goes with CA and there is nothing you can do about it.

I get fatigued after the simplest of tasks. It makes me mad. I rest between tasks trying not to sleep because I don't want to interfere with my night time sleep pattern. Sometime it is all I can do to propel my chair. When I think what I used to do!! Still you can't go back.

I think the answer is to pace yourself, do one thing and then rest, even if you feel o/k.

Take care

Regards

Carol

[jayjay1251]

TY ALL FOR UR REPLIES LIKE CLIVE SAID ITS REASSURED MYSELF ITS NOT JUST ME

[silkwood]

I have CA too. I don't yet experience tiredness but my brain must get fatigued because my walking and talking is worse in the evening.I sleep well at night but have been iknformed I do a lot of shouting and talking in my sleep.I wake up feeling ok but I do feel weary of the struggle to walk and do everyday things now.

[Hidden]

I have simmilar experiences to Silkwood. I don't usually tire easilly but on occasions I do suddenly feel extreme tiredness. I feel like my brain is being gently squeezed and makes me feel funny and very relaxed. I'm not sure what causes it but when it occurs I also get other weird-like symptoms like a kind of dizziness as well. Also when I feel like this I get quite startled by the slightest of noises. For example, if I'm lying in bed and a door shuts or the phone rings it sounds very loud and I jump and shudder. So weird!

[jayjay1251]

MY ATAXIA SPECIALISTS PUT ME ON VITAMIN E SUPPLEMENT I BELEIVE THERES A TRIAL WITH THIS BUT MY WIFE ALWAYS RANTING AND RAVING AT ME COZ WE CANT GO OUT SHES IN A WHEELCHAIR TOO I FIND STRESS ALSO AFFECTS MY FATIGUE

[berejena]

Hi jayjay 2451 hope you're coping, I also get very tired even after a goood nights sleep, I thought at first it was just me but know its caused byt SCA, I live in Spain & yes sunshine has made a difference (10 yrs) even though the last few years have been tiring. Rest a lot, I find it frustrating but it has to be done.

Take care

berejena

[jurgen in reply to berejena]

I quite agree.

I never thought my feeling I´m lacking sleep might be caused by SCA.

But, one HAS to fight this.I know people who sleep and sleep until they are

dead.

That´s why I ask my wife to kindly drive me to physical therapy 2 or three times

a week. ( I do make a point being dressed properly !!)

I can´t be late. Once I was - that was VERY embarrassing

Regards

Jurgenh