knowledge

[paul456]

We don’t need neurologists because the people on this website has more knowledge and experience than any neurologist in the country. I think neurologists should use this website to do research.

One thing for sure is the human brain has enormous amount of power but when it goes wrong it has an enormous affect ☹️.

Did you know the subconscious part of the brain has 100 times more information than the whole encyclopaedia britannica by the time we are 21. A bit of useless info🤪

Take care all and stay strong x

[Delfy]

As a medical scientist and a person with the condition, I would have to disagree. Neurologists spend years studying cytology, neurological structures, mechanisms of action, aetiology of diseases, etc. They also continue to keep up with latest research, distinguishing between reliable and valid studies and less reputable studies, in a full time effort to help their patients and promote treatment. The sufferers, like myself, can share patient experience, links to tips and research info with others, but there will be a lot of false science, and sharing symptoms is about giving each other support. We would have a very long way to go to be experts in the field of neurology, and so many of us are grateful that they've put in the years of study, and continue to do so, so that we can benefit and, hopefully, find improved treatment to prolong our lives.

[paul456 in reply to Delfy]

Hi Delfy of course we need neurologists to diagnose the problem in the first place we also need medication and research is important I think it was my stupid way of emphasising how useful this website is to lot of people. I promise I won’t do it again 🥸

[Delfy in reply to paul456]

Lol, don't worry about it. We're all going through an awful diagnosis 🙂

[Guardsman68 in reply to paul456]

Hi Paul I totally agree with what you were getting at and Delfy I commend you on your achievements can you please if you ever come across one of these neurologist you speak of please let us all know where we can find them. Wobblebee I’m with you on your comment.

NO SURRENDER

[PatsyIpswich]

Ha! Presumably tongue in cheek. They do rule out treatable conditions.

[7151]

Hi yes your right but i find my neurologue is learning with me so is my GP ..they are certainement doing there Best !

[wobblybee]

🙂 I’d prefer to be ‘listened to’….rather than feel I’m being processed.

[Telegraphist]

I shall be forever grateful to my neurologist for promptly diagnosing my second, life threatening but treatable, rare neurological condition. Nevertheless, I can see where paul456 is coming from as, since my hereditary cerebellar ataxia is (presently) untreatable, my neurologist is no help with this condition.