As far as being a help to ataxia suffers some GPs are like a lighthouse in a desert VERY BRIGHT but no use whatsoever.
GPs: As far as being a help to ataxia suffers some... - Ataxia UK
GPs
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paul456
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🤔 If I was on a ‘specific medication’ from a Neurologist..I’d never ask a GP for an opinion re change in symptoms and dosage. I’ve done this in the past and it was a mistake..It’s frustrating to say the least when they can’t answer basic questions about ataxia, or identify why something is happening, but..there are over 7,500 Rare Diseases, and Ataxia is one of them..
and some are a beacon of hope
Absolute waist of time !!! They are not interested because they know nothing about it and wouldn't bother reading up about it. I have the late onset of FA.
So true, my doctors do not have a clue about ataxia or rare diseases. I have actually learnt them about rare things. Trouble is they are not bothered about rare things and do not wish to learn. With all the rare diseases in this world today you would think they would learn about them. So we struggle on.Suzie
You can say that again. Likewise with Fibromyalgia, which causes me to shuffle rather than walk, nowadays. My balance is poor and I don't always see where I'm putting things, which can result in either not getting the cup on the table or smashing it on the table, for instance.
I find I can also trip over fresh air!
Very annoying, as I used to be a dancer as well as a nurse!
Cheers, Midori
Nice simile
