Omaveloxolone: I have signed FARA's petition to... - Ataxia UK

Ataxia UK

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Omaveloxolone

medea profile image
8 Replies

I have signed FARA's petition to the FDA for 'access to 0maveloxolone' (for the treatment of Friedeich's Ataxia) and thought to put the address here for anyone interested -

curefa.org/advocacy.

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medea profile image
medea
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8 Replies
Cuds profile image
Cuds

signed it as well - I have put it on twitter, thanks for putting it on here!

Adam1420 profile image
Adam1420

I have also signed !

turner47 profile image
turner47

Can you tell me what this is all about as I have FA.

SueMillman profile image
SueMillmanPartnerAtaxia UK in reply to turner47

Hi, I'm sorry that you haven't had a reply to your post. Please have a look at the post I made on this topic today.

Sunny8088 profile image
Sunny8088

signed

turner47 profile image
turner47

I have now signed

SueMillman profile image
SueMillmanPartnerAtaxia UK in reply to turner47

And now I realise you must have found out about it already!!!

turner47 profile image
turner47 in reply to SueMillman

Yes thankyou Sue. Wish they would find some help xxxx